Monday, February 13, 2017

Stop neurodiversity write to Price and Gordon

Those of you who read my blog, remember that on the day Donald Trump was inaugurated as POTUS, I sent him an email which I posted on this blog, telling him about the neurodiversity movement and urging them not to allow them to serve on the IACC or in other branches of government.  I also wanted to write to Tom Price who was Trump's choice to be HHS secretary.  I delayed doing so because the senate had not yet confirmed his appointment.  Now that the senate has confirmed his appointment, I copied and pasted the long letter that I wrote to Mr. Trump urging him to fire John Elder Robison, Samantha Crane, and any other member of the neurodiversity movement who is involved in governmental autism policy.  I'd like to say to anyone who happens to read this blog post and is an American citizen that I hope you will do the same.  You can contact Dr. Price at secretary@hhs.gov.  Please drop him a line and tell him about the neurodiversity movement and the Autistic self advocacy Network and ask him not to appoint these people.  Also, ask him about the possibility of not even appointing an IACC.  Though the CARES act which authorizes the existence of the IACC can only be amended or repealed by congress, I'm not sure the HHS secretary has any legal obligation to seat an IACC.  I also encourage anyone who feels as I do to write their senators and their congressperson and ask them to repeal or at least amend the CARES act so neurodiversity does not serve in our government.  I've already done this.

Another person whom I've written is Dr. Joshua Gordon, the director of the NIMH who is the person who recommends people to be on the IACC, but really has the last choice, because Kathleen Sebeleius and all the other HHS secretaries just rubber stamped Tom Insel's choices.

Dr. Gordon, has just been appointed as NIMH director this year.  As the case with Dr. Price, I hope these are two new brooms who can sweep clean.

You can contact Dr. Gordon at  nimhinfo@nih.gov and ask him not to appoint any ND's to the IACC or allow them to review government research grants by John Elder Robison, Stephen Shore, or any other ND's.  Ask him not to seat an IACC if he has the power to do so, though I'm not sure what the law is. 

Most if not all of these ND's were appointed by Barak Obama, Kathleen Sebelius sp? and Thomas Insel.  The Obama administration and Insel have been a disaster for autistic people.  I realize the Trump administration most likely is just interested in trying to show vaccines cause autism and does not care about doing anything about the ND movement, but at least that we have some new kids on the block, those of us who feel as I do can at least try to do something about it.

7 comments:

Will said...

As long as a neuro diversity person is not on any autism committee I do not care about Trump or and other government official. maybe you should get on an autism committee John Mitchell.

jonathan said...

Thanks for the endorsement, Will, but I'm not interested. I think the IACC is absolutely farcical and should be abolished.

Seeing Clearly said...

Thank you for that you and I both want a cure and we are not going to let the Neurodiversity movement which stigmatizes diversity more than it embraces it get in the way of our cure .

Anonymous said...

is very educated the establishment or whatever the name is starts investing into attacks like propaganda there is a war For our minds and beliefs and spirituality we have labels like conspiracy theorist,we have medical labels like ADHD Autism ,OCD and so on they are tribalist they want to tribalism if we all have a label we are going to be divided they indoctrinate tolerance,acceptance and diversity but are also supporting these labels and categories so they are dividing us by giving us categories and then telling us to love our labels in the case of the medical "screening " (anti-cure).

Seeing Clearly said...

This comment was originally posted by seeing clearly media at the www.geoengineeringwatch.org website on the global alert news article of Saturday march 4th.

"Thank you for this show , thank you for being part of the cure and not the disease so many people in our society choose to be part of the disease and then call us the disease they call us the burden to society they call us crazy radical conspiracy theorists extremist they call us the disease when in reality there being part of the disease its total inversion of reality it's everywhere many people turn to the disability community and convince themselves they are a community of honor but as I researched into that community and really analyzed and studied what there all about with the exception of a few individuals they are part of the same cancer we are fighting against I mean Transablism, anti-cure ideologies, Neurodiversity which doesn't really embrace Neurodiversity it just stigmatizes , disability pride and lots of other backwards thinking and activities go on in that very respected disability community which also is a community of betrayal to the common good just like the spiritual institutions just like the environmental institutions and all the rest they chose to be part of the cancer not the cure for example "disability is a beautiful thing " and as they fuel the tumor they are screaming progress progress and then when we start fighting the cancer they start crying out saying our progress is being undone. "

Unknown said...

Hai. My first time posting here, though I have read some of your writings over several years. [In fact I completed your novel TMBR.] In the case of what is now considered a level 1 ASD, a "cure" is to my mind at least as confounding a concept as level 1 ASD itself; and by that I mean this condition manifests itself in such varied ways it's difficult for me to conceptualize precisely which part of the problem we are trying to eradicate. Conversely, for the same reason, the "tribalism" of the neurodiversity movement comes across as utopian, at best---ultimately we are such a diverse group of individuals there is no way we could unite merely on the basis of our social/communication deficits; that's a naive idea. Dividing the social world between "aspies" and "neurotypicals" is as anti-intellectual as the other false social divisions human history has suffered, and I'd go so far as to say that perhaps the "stars" of the ND movement are cashing in at the expense of others (who don't have PhDs, or book contracts). So I guess I'm a "moderate" within the debate. :)

jonathan said...

yes, I agree, a cure is an abstract concept but in lieu of one, I am in favor of scientific research that will mitigate the hardships and disabilities of ASD's as much as possible. If the person functions as well as a non-handicapped person then I guess we could consider that a cure at some point. Not sure I understand the rest of your post, but thanks for your comment and I appreciate the fact you took the time to read my novel