I've waited awhile for the Autistic Self Advocacy Network's 2013 form 990, the mandatory IRS tax form that non-profits are required to fill out and make available to the general public. I've finally found a website that has the info. We see that in 2013 ASAN made $452,643 in revenue. Out of that amount $378,264 went to pay, salaries, rent and other overhead costs including Ari Ne'eman's $71,000 annual salary. He again raised his salary, this time by about 10%. Of course this is a far more modest increase than that of the 2011-2012 period, where Ne'eman raised his own salary 62% in one year from $40,000 to $65,000. In spite of the fact that ASAN had a net fundraising loss in 2012 of nearly $15,000. We see that nearly half of their revenue covered salaries, benefits and payroll taxes. We see that they had just under $75,000 in revenue minus expenses. It is unclear where this money is going, whether it is sitting in the bank as reserves.
In terms of ASAN's service accomplishments, they cite research making medical care more accessible to persons on the spectrum. Far less was spent on this than on Ne'eman's salary.
They spent nearly a quarter of a million dollars on outreach and advocacy and educating people on the disabilities movement in regards to autism. I wonder how much of this was in travel expenses to go to Autism Speaks walks and harass parents who were walking trying to raise money to try to help their kids.
The neurodiversity movement has often criticized Autism Speaks for a small percentage of money that goes to help families or services. On the day6 radio show that Ne'eman and I were recently on, he comments on the small percentage of money that NIMH spends for adult research and services for families rather than on scientific research.
I realize I'm not an accountant on any kind of tax expert, but I'm curious as to what ASAN has accomplished or done in 2013 to help those on the spectrum. Perhaps they are the pot calling the kettle black. Well I linked to their 2013 statement above in case anyone's interested.
Addendum: One thing I neglected to mention in this post is that I'm curious as to how ASAN spent $378,000 plus on overhead out of a little over $450,000 in revenue but managed to spend a quarter of a million dollars on outreach and advocacy and nearly $50,000 on their health care program. Perhaps there's overlap between these and the overhead expenses, I don't know. As I said before, I'm not a tax specialist of any sort, but I'm rather curious. It's tempting to contact the IRS and ask them to investigate this, but I doubt they'd do it and not sure it's worth my while. But I'll keep Gadfly readers posted of any future developments.