Thursday, June 22, 2017

Will Divisions in the Autism Community ever be resolved

Individuals involved in autism, including parents, professionals, and autistic people themselves have a wide range of opinions on a variety of issues. These include persons who believe that vaccines cause autism, though the evidence for this is lacking. This also includes people who believe in the concept of neurodiversity, though the evidence of this concept as a biological fact or effective way of resolving the problems of autism are also lacking. There are also individuals such as myself who don't agree with either camp and have their own strong opinions about autism. The various sides have been at loggerheads with one another going back to the nineties when the internet had widespread use and diagnoses of autism increased rapidly. There have been nasty insults traded back and forth by all sides. On occasions there have even been death threats such as when one neurodiversity individual threatened to murder as many NTs as he could Likewise researcher Manuel Casanova stated that he'd received death threats from some people who believed vaccines caused autism when he made statements contrary to their beliefs. Temple Grandin's mother, with the exception of her unfortunate statement linking autistics to pedophiles, has stated that she usually stays out of autism debates because of all the political disagreements in the autism world.  Bernard Rimland's widow (forgot her name) has made a similar statement.

Lately, there have been some suggestions that these divisions can and should be resolved for the common good of all concerned. This line of thought is that if we all worked together on common goals then we'd actually be able to do things to help persons on the autism spectrum and their families vis-a-vis, insurance, lobbying legislatures, etc.  John Elder Robison recently wrote a blog post to that effect. This was partially in response to Amy Lutz who expressed concern that JER did not understand that she needed help in finding a residential placement for her son, when he suggested that if his own dog could make a choice that Lutz's son could too.  Ms. Lutz cordially invited John to come to her home and have a dialogue with her son about where he'd want to live, possibly to show to him he might not understand the problems someone with an IQ of 40 might have with that.  I realize at some point when John's busy schedule permits him time and he's in the Pennsylvania area he might accept Amy's invite.  I hope he does.

Though he has not yet accepted her invitation, he did write a conciliatory response to her concern.  This gave her encouragement believing that at some point the autism community could work together for the common good.

In a facebook exchange with Thomas Clements (the autistic buddha) he expressed unhappiness at being attacked by a neurodiversity SJW and asked for my input as well as John Robison's and Steve Silberman and others.  My only comment was that he was now learning what neurodiversity was really about.  This prompted a response from Silberman stating that my comment was an example of all the infighting among those interested in autism and it prevented those afflicted from receiving the help they needed.

Roger Kulp stated that there were no way all the sides could work together because of the great disparity of the groups in their goals.  Also he seemed to blame the psychiatry profession for being too inclusive of too many people to be included under the autism rubric when they wrote later versions of the DSM.  Roger makes what I believe are some valid points as there is a huge difference in functioning and clinical profile between lets say Alex Plank and Amy Lutz's son and Jill Escher's children.

I would like to give my take as an individual and go beyond just the entire group.

I don't believe the divisions in the autism community will ever be resolved nor will I make an effort to do so.

I will never work with neurodiversity people who have called me a nazi or at least implied this.  I will never work with people who have insulted my mother called her a witch and a yapping shrew and have stated that she's a danger to the autism community.  I will never work with people who have implied I might be out to engage in click bait and publicity for my blog after I angrily responded in one thread in another blog when they were ridiculing my celibacy and calling my mother names, I will never work with people who state that persons who want to find treatments and cures for autism are looking for a way to intentionally abort autistic fetuses.  When journalist Erika Hayasaki was writing a profile about me that was eventually published in Newsweek magazine, a bunch of NDs wrote her en masse, urging her not to write about me.  They probably also wrote Newsweek urging them not to publish the article.  I will never work with these people.

There is no way my goals and theirs will ever be reconciled, so I'm not going to try.  I don't believe that doing research on whether or not vaccines cause autism will get any results as this has been done ad nauseum.  I don't believe acceptance and accommodations are going to resolve all the problems of autism.  I don't believe that embracing businesses like specialisterne, SAP, Mindspark, etc. stating that the neurodiversity model will enable autistics to make a living will help.

In a facebook exchange with Amy, when she was enthused with Robison's post and felt that all the factions could work together, I stated I did not agree.  She asked me if I felt she was naive.  I told her I believed she was.  I still believe people who think this way are naive.

I hope that scientific research will be done that helps find treatments and prevention(not abortion) for autism.  However, at the present time, there are no easy answers, and I believe it is naive to think so.

Though John Robison may have had good intentions with his post, I don't believe the various factions will ever work together nor should they attempt to. 

Tuesday, June 20, 2017

Silberman's Neurotribes a major motion picture?

In the some news is terrible news department, Gadfly has just learned that Steve Silberman's book  Neurotribes will very possibly be made into a motion pictureI'm not sure, but I think (and hope) that this is not definite yet, and the book has been optioned, but a film is still not a done deal. This is a journalist who omitted portions of Kanner's statements that appeared in the primary source to change the meaning. He also stated that Kanner excluded patients who had seizures from an autism diagnosis to make the claim that this was part of the reason of the great rise in autism diagnoses.  This is despite the fact that at least one of Kanner's eleven original cases did in fact have a seizure disorder. This is an individual who has justified the analogy between people who want a cure for autism with eugenicists and nazis.  This is someone who has stated that disability is part of the human experience and we all become  diaper wearers at some point.  He has compared autism with homosexuality.  When asked about people who want to cure autism, he compared it to his parents taking him to a psychotherapist when he came out gay as a teenager to cure him of his homosexuality.

When the ND's bullied William Shatner on twitter a couple of months ago, he lead the pack of people who said that the NDs were the good guys.  These included persons who called Shatner a human shit stain and told him to shut the fuck up, and Ari Ne'eman's dishonest and abusive tweet that Shatner was yelling at autistic people.  He was appalled when Shatner had the temerity and chutzpah to block him on twitter.  Silberman blocked me on twitter when I politely told him and Thomas Armstrong they had never been in special ed and did not know anything about it.  Silberman loves to dish it out but he can't take it.

He has compared the autistic brain to the non-autistic brain to a windows vs. linux operating system.

He claimed Autism Speaks not having board members of the spectrum was like the NAACP not allowing any blacks in.

Though I purchased Silberman's book on kindle and read it, I will not be seeing this movie if it is made.  I urge anyone who cares about autistic people and their families and the suffering they have to endure that this man has made a mockery of to boycott this movie and urge people to do so. 

When journalist Erika Hayasaki wanted to write a profile about me and Newsweek was interested in publishing it, she interviewed neurodiversity activist Nick Walker in order to achieve balance in the article.  Nick Walker broadcast this news to some of the nastiest people in the ND movement and they contacted Erika en masse (and probably Newsweek also) urging them not to publish the article about me.  Fortunately, this was one of the few times the NDs failed at one of their crusades.  However, Newsweek apparently wanted to compromise with the hate mongers.  The headline of the print article was "A hater's guide to self-hating", something many NDs have been labeling me as for the last seventeen years or so.

I'm going to try to possibly return the favor and see if there isn't someone at Paramount that I can contact and see if I can put a stop to this project.  There is now a petition to Paramount Pictures urging them not to produce this movie  
sign here
I guess I will have to try to have a stiff upper lip and not let this ruin, my day, my week, or possibly the next few years that it might take to develop this project to its completion.

Addendum: For anyone interested in contacting Paramount about this movie, their number is (323) 956-5000 and mention the movie and the name Elizabeth Raposo.  They took my name, number, and complaint and said they'd have someone get back to me, but I won't hold my breath.  I also called Lorne Michaels' office at (310) 746-0300 and they said they would tell him, but I doubt they will, but these are the numbers to complain if you're interested in doing so. 

Thursday, June 15, 2017

Gadfly approved for retirement social security

Life is filled with many milestones for typical people.  Getting your driver's license at 16, graduating high school, turning 21 and getting your first drink in a bar, graduating college, getting your first job, etc.  One of the last milestones of life (shortly before your life comes to an abrupt end) is being approved for retirement social security and getting your first check.  If you have an autism spectrum disorder, this is a particularly significant one, given the huge percentage of autistic people who are unable to work, receive SSI and so forth.  I'm happy to announce that I'm an individual on the autism spectrum who will turn 62 in less than three months and I've just been approved for this significant milestone.  My monthly allotment won't be much, but it will certainly be helpful, considering my financial situation, though not precarious has certainly been less than stellar over the last several years.

Recently I wrote a post where I commented on the fact that Ron Sandison, Temple Grandin, and, by extension, Autism Speaks stated or at least implied that autistic people who don't work are lazy loafers whose parents spoil them and baby them.  Tom Clements (AKA "the autistic Buddha") wrote a laudatory post on facebook lauding sandison and Grandin's comments.  When I politely begged to differ in a comment one of Tom's friends (a nasty ND) called me an enabler and a quitter and I blocked this person.

To anyone who thinks I've been a slacker, particularly in light of this significant milestone in my life, I'd like to write a post about my work history and this subject.  This may be long so bear with me.

Though I went to special education as a young child I was mainstreamed by high school.  In my adolescence, I went to pot both literally and figuratively and got poor grades and had tremendous problems.  Going to college at the time seemed out of the question for me.  My parents had a swimming pool and paid me some extra money by cleaning it and putting chlorine and muriatic acid in it as a pool service man would do.  I thought maybe I knew enough to be a pool service person and that I'd be a self-employed pool cleaner for a living.  My disability and executive functioning problems meant I'd never be able to carry out my modest ambition. I worked briefly during the summer doing clerical work at the los angeles suicide prevention center.  At eighteen my last year of high school i worked an hour a day doing janitorial work at a school my then psychologist owned.  These were my only jobs at the time.

Not knowing what else to do at age 19, I enrolled in a community college with the possible goal of being an academic or clinical psychologist.  By the time I was nearly 22 years old and ready to transfer to a four year university I saw another psychiatrist at UCLA who was the first person to tell me I was autistic ((I'd been diagnosed by one psychiatrist and a pediatrician prior to this but had not been told of my diagnosis by my folks or them).  He commented on the fact that I was nearly 22 and had not worked and asked me what I wanted to be and when i told him I'd thought about being a psychologist or brain researcher he proclaimed, "you're going to have to settle for something less than what you want to be".   He suggested manual labor as something viable but was not more specific than that.  I barely graduated college unable to prove him wrong.

My disability and mediocre college performance made graduate school out of the question so at age 24 I first started trying to work.  I got my first job loading items onto industrial palates in a warehouse for 3 dollars an hour, minimum wage at the time.  I made numerous mistakes and though they didn't fire me they took me off the loading job and had me stamp some stuff with a stamper, when I asked to be put back on the former job, they consented to give me a chance.  some coworkers complained to me about mistakes and I left the job.

My next job and first fire was from a large insurance company where I was hired to do clerical work.  They were a conservative establishment and required employees to wear a tie and dress clothes.  I got some dress pants but neglected to get them altered by a tailor and looked very bizarre coming into the office.  A few weeks later I was fired and the boss suggested I might be hyperactive and I should get on a diet without any sugar.

Undeterred, I got a job in a drug store typing prescription labels.  It was an exploitive environment where various labor laws were violated and I was not allowed to take two breaks during the day or be paid for overtime and I angrily left this job.

I had another five week job typing up sales reports for this company that sold art stuff and then they claimed business was starting to get bad and they had to let me go.  I had problems with hygiene on this job and the boss dropped a subtle hint by handing me a small can of deodorant.

I had another job doing clerical work for a couple of hours and the boss said she thought the job was too confining for me as I was not paying attention to work and let me go.

Another job, I did data entry and made so many errors they fired me after three days.

I got a job with the phone company which was less inclined to fire people then other companies, and made the probationary period.  I was discriminated against in a job advancement opportunity and filed a grievance with the union.  Not long after this, they started pestering me about mistakes, being really nasty to me and it got so bad I was compelled to quit after being there more than three years.

I got another data entry job and they falsified the amount I was producing and used this as an excuse to fire me.  I still had problems with hygiene then and that may have been a factor.

I had another approximately three month data entry job where I sometimes got in trouble for raising my voice and the boss threatened to let me go.  They supposedly started running out of work and laid me off as I had the lowest seniority.

Another data entry job, I was working at the computer and supposedly all the work I had done was wiped out for some reason and they let me go.

After this my mother called the Los Angeles Chapter of the Autism Society of America asking them if there were any kinds of jobs where they would hire and keep autistic people.  This was in 1985 before specialisterne, rising tide car wash and others who claimed to help those on the spectrum with employment matters.  They referred us to the California State Department of Rehabilitation.  Because of my ability to type and the belief that people who worked in the medical profession were kinder and more tolerant of differences, they recommended I take their course in medical transcription.  It was a very abysmal program and they treated me badly.  For further details anyone interested can read here. Despite voc rehab's bad treatment of me, I approached one person who consented to train me as a medical transcriptionist based on what little I'd learned from these people. As a trainee, I was paid a very low rate on production basis and for about a year I worked for this person as an independent contractor for substantially less than the minimum wage.

As I learned more about transcribing, I managed to get a few gigs but most of them did not last long and were not as good jobs as others with more skill and experience could get.  I finally got my first crack at one of the more challenging and potentially higher paying hospital jobs but was fired after a couple of months.  I was fired from still another job later.

I finally got a job in a clinical setting which was easier than hospital transcription where I was not fired, though I get into arguments with co-workers and was occasionally called on the carpet for less than satisfactory work.  I lasted there a year and a half before getting fired.

At this point, I thought I'd reached the end of the line and have to apply for SSI where even if I qualified I'd be restricted about assets in the bank and have other restrictions placed on my life to get a low amount from the government.

I'd been told by various people that if I disclosed my disability that would help.  I was referred to this organization who would pay employers the first two months salary of their disabled employee as an incentive to hire the disabled worker.  A radiologist with a practice agreed to this saying he had a son with a learning disability and i'd work for them and they'd keep me there forever.  I tried to go as slowly as possible in order to avoid the errors I'd made in the past and was told by the office manager i was not doing the work fast enough.  After working for them a month, the office manager fired me on the radiologist's day off.

I decided to try one more time before giving up.  I found a company that did worker's comp and PI reports for attorneys and I was hired to type up these.  The supervisor did not want to deal with the organization and preferred to work with me herself and did not accept their payment.  I worked there for a bit over two years.  Then the company was accused of running afoul of the law and was starting to have problems,  I was let go as the most expendable person, though they later completely went out of business.

I found another transcription service and worked there for a year.  After this I became better and worked for another place for almost three years, but they restricted what doctors and accounts I could do and I ended up getting the worst work you could get being paid on a production basis.  I had conflicts with them and resigned.

I worked as an independent contractor for another place for several years.  Then I was fired from a couple of other jobs after this and retired a few months before my fifty-second birthday. I applied for disability which I've detailed in other posts which I won't link to but I'm sure the interested reader could find if sufficiently motivated.  It was a heart wrenching and humiliating experience and to make a four and a half year long story short, I was not able to get disability.

Ten years later, it looks like I will finally be able to get the disability money that I had put into social security in the form of retirement starting in November.  I may write a brief follow-up post after my first payment is deposited in my checking account.

Contrary to all the propaganda headlines from the wall street journal and New York times about what a great asset autism is in the workplace, the vast majority of those on the spectrum have difficulty working, receive SSI, and/or are supported by their parents.  Therefore, I'm rather proud of the fact I was in the workplace (though not employed 100% of the time) for the number of years I was and am able to have the cachet of this milestone.

I apologize for the length of this post,but there was no way I could express my work history and what happened to me over a more than forty-three year period more concisely. If anyone stuck around long enough to read the thing in its entirety, I do appreciate that.

So I just want to say to Temple Grandin, Autism Speaks, and particularly Ron Sandison, this is my work history.  It's hard to know it completely from this blog post without having experiencing it first hand as I did but I went to Hell (Mr. Sandison I know you believe in Hell so in your case I'm not saying this just figuratively)and back.  Being fired from those jobs and being compelled to apply for disability was absolutely traumatic, humiliating and heart wrenching, and I don't appreciate the three of you implying that I'm a lazy loafer.

The New York times and Wall Street journal do autistic people a disservice by claiming they have all these hidden abilities that make them hugely valuable to these companies and I don't appreciate that either.

But I know the majority of autistic people will not achieve this milestone (not to put anyone down who is less able than I am) and this is a proud moment for me.

Monday, May 29, 2017

Neurodiversity's latest crusade of censorship

I see the neurodiversity movement has a new crusade to get amazon to ban the sale of a book they find offensive.  The book is entitled how to prevent autism, some of the most vicious fighting words from their viewpoint.  They believe that no person has a right to prevent any person from existing or from being the person they were born to be.  They've started a petition which at last count has approximately 2,600 signatures.  Amazon has apparently given them a positive response claiming they will look into the claim which is very concerning to me.

I believe this is censorship and that is wrong.  They've managed to bully the government to say they will stop combating autism.  They managed to bully autism speaks into giving up their statement that they want to prevent autism.

If I could prevent a child from being handicapped I would certainly do it and I would hope that any parent or medical professional would do the same and I'm not talking about abortion of prenatal fetuses.

I doubt very much that the book's author Dara Berger would be able to prevent her daughter or other children that she might have from becoming autistic, so it is something they should not even worry about.

Some people have stated that I'm just as bad as the other side in terms of my blogging.  There are some neurodiversity proponents who would claim some people on the other side are just as bad and do things like this.

On the second point, I must concede they would not be wrong.  About a year and a half ago, shortly after "neurotribes" was published, a group of rabid anti-vaxxers protested to Amazon, and the print edition of Steve Silberman's tome was put in abeyance and Amazon would not sell it for a brief time.  But finally, they internally investigated the fact and could not find a basis for discontinuing the sale and reinstated it.  The anti-vaxxers were wrong to do this.  However, two wrongs don't make a right (though two Wrights did create a wrong with the way autism speaks turned out :)).

As low a personal opinion as I have of Steve Silberman and the book Neurotribes and its horrible message, I would never ask Amazon or anyone else not to sell the book or say that it should be banned.  As low a personal opinion I have of Silberman and other adherents of the neurodiversity movement, I would never advocate denying their freedom of expression to publish what they want in a book as long as they don't libel anyone.

It's a sad day that neurodiversity may actually succeed in bullying amazon and other entities into censoring free expression.  Yes, the same goes for the anti-vaxers as well.

I can only hope this behavior stops on both sides of the aisle.   

Addendum: I guess the first amendment only applies to government stopping publication of things and free speech, so I was mistaken when I said that these neurodiversity individuals were stomping on first amendment rights, so I've made corrections to the original blog post. 

Sunday, May 21, 2017

SB's (Simon Baron-Cohen) BS editorial on neurodiversity

I see the renowned simon baron-cohen is at it again with an editorial urging people to embrace the concept of neurodiversity. Many years ago, SBC wrote another article in which he stated that high functioning autism (as opposed to low functioning autism) should not be considered a disability, except when the person is applying for SSI or some other disability benefits in some sort of bizarre Orwellian double think. In the new essay, he's changed his tune a bit, stating that though autism (including high functioning) should be considered a disability, it should not be considered a disorder.   He repeats the statement from his first piece that autistic versus non-autistic is no different than left-handedness versus right-handedness.

This is an individual who has espoused the controversial assortative mating theory of autism claiming that autism was only rare until the advent of the IT field when male and female computer nerds starting meeting each other.  After having offspring, these nerds managed to populate the world with autistic people at such a fast rate the prevalence went from 1 in 2,500 to 1 in 68 in just one generation.

Even more bizarre is the fact that he claimed in his article about autism, talent and hypersystematizing that among the great superior skills that autistic possess is a visual acuity equal to that of birds of prey.  This was based on one study done by someone named Ashwin who worked in Baron-Cohen's lab and SBC himself is one of the secondary authors.  It turned out the whole thing was just an error on the researcher's part in using the optometric equipment to assess the visual acuity (assuming it was not outright dishonesty by the researchers).  The optometrists who designed the test refuted what SBC's group said by showing they did not use the equipment properly and the group had to concede they were in error.

We also have to judge the good doctor by the company he keeps:  The individuals whom he consulted with and gave him the ideas behind his first piece include Temple Grandin, who insults and shames autistics who can't work and insults their parents, David Andrews who is abusive and profane to anyone who does not agree with him and the self-diagnosed Lianne Willy.

For the above reasons, we must take with a grain of salt what this essay may say, but I'd like to dissect it anyway.

He uses genetics stating that though 12% of autistics have de novo mutations that almost 50% of the genetics of autism involve common inherited variants.  In at least some of the studies I've read, including those from Jonathan Sebat and Michael Wigler and with personal communication with one Dan Geschwind, the rate of autism involving spontaneous mutations is significantly higher than that, possibly between 20-30%, though a substantial amount of autism does come from common heritable variants.  According to Sebat, the number of de novo mutations is likely underestimated due to the fact that the instrumentation to detect them still has limited power and it is likely more cases of autism arise from de novo mutations than have already been found.

SBC cites an article by Huguet et al stating that almost 50% of genetic association with autism comes from common variants and states that these are not disorders but rather natural genetic variation.  SBC ignores the part of the article where they state that environmental factors are 38% responsible for autism, so this goes against the idea of natural variation.  SBC conveniently ignores the research showing a much higher prevalence of autism in DZ twins than in non twin siblings who have the same genetic makeup.  He also does not address the fact that autism has been associated with Thalidomide, acetominophen, pre-eclampsia, cocaine, and other environmental factors. This suggests that autism is not a natural variation.

Baron-Cohen cites a variety of neuroanatomical studies showing that certain brain areas are either larger or smaller in autism and this is not a sign of disorder.  Also the fact that there are more neurons in the frontal lobe in some studies on autism.

He neglects to cite work by Bauman and Kemper who have found smaller numbers of neurons in parts of the cerebellum and hippocampus which would point to a neuropathology, i.e. a disorder.

More germane, he does not mention the work of Wegiel who has found heterotopias in post mortem autistic brains as opposed to controls.  Heterotopias occur when during fetal development germinal cells which are developing into neurons fail to migrate to their correct spot and are misplaced in the brain.  This causes dysfunction and often seizure activities.  This is likely why seizure disorders occur in as many of 30% of autistics.  Heterotopias in the brain are analogous to an inguinal hernia where the testicle is out of place or an ectopic pregnancy in which the fetus is not in the correct position.  There can be no question at all that this is a disorder and not a difference as SBC insists.

SBC and other NDs state that epilepsy is a co-morbid condition along with autism, but is not autism itself.  I'm curious how neuroanatomicaly, they can separate the parts of the brain which are just autistic and do not give rise to seizures.  The fact that autism is associated with seizures is significant and you cannot separate the two as SBC and other NDs attempt to do.

His next argument that autism is not a disorder is the fact that autistics, as a group,  do well, on the block design portion, of the Wechsler IQ test, showing their aptitude for hypersystemitizing and how things work.  This is one argument that people use to claim that autistics have the aptitude to do certain jobs such as software testing and all of the BS pieces claiming they make great employees.

While it's true that autistics as a group do well on block design, or at least better than on other portions of the IQ test ,and this is a widely replicated finding, it's not true of all autistics.  I'm one of them.  I have a scaled score of 4 where 10 is average.  So I'd be mentally retarded if I scored this low on all of the subtests.

Though autistics do at least comparatively well on the block design test, they do poorly on the comprehension subtest of the Wechsler.  This is where they are asked common sense questions such as what would you do if you found a stamped envelope on the ground or if there was a fire in a movie theater.  I also do poorly on this test though better than on the block design.  This is very relevant to the problems of autistics on the jobs and in other social areas as it reflects impairments in social judgment where they would say something offensive to a boss on a job and get fired or this would make people not like them if they had a poor social understanding in other areas.  Baron Cohen does not go into why a good aptitude for block design means autism is not a disorder, but a poor score on the comprehension subtest does not mean autism is not a disorder.

Lastly he claims that a disability is different than a disorder because a disability can be properly accommodated for, but not a disorder.  Though he stated in 2000 that high functioning autism is not a disability, he stated in this second piece that if a person with autism does not show a disability he should not be diagnosed as such.  He gives the comparison that if a fish had to climb a tree it would be considered disabled.  He claims that autism should not be considered a disorder because they could function well in the correct environment.  But does not go into any of the details of how this could be done.  I'm still waiting for SBC or any other member of the neurodiversity movement to state how autistic disability can be accommodated for, legally or otherwise, so they could function as well as a non-handicapped person.  SBC seems very short on ideas in that area, but if he has any suggestions, I'd be glad to hear them and he should explain how autism can be accommodated for so that it would cease to be disabling. 

Though I'm more severely autistic than Temple Grandin, John Robison, Mike Carley, and others, I'd be considered pretty high functioning by most standards.  If Baron-Cohen had autism to the extent that I have it, he never would have been able to go to graduate school, become a psychologist and college professor, never been able to write his books and get them published, marry his wife, and have his three children.  If that had been the case I can't help wondering whether or not he'd still consider autism as not being a disorder.  

No one should take this man seriously.  He should not receive research funding or be a licensed clinician if he is one already.  I get so tired of hearing SB's BS.  

Wednesday, May 17, 2017

Amy Lutz Provides Neurodiversity Proponents Opportunity to put up or shut up but will they accept the challenge

I've just finished reading an interesting piece by writer Amy S.F. Lutz, the parent of an autistic boy with an intellectual disability.  She challenges the mantra 'presume competence' that is repeatedly uttered by neurodiversity proponents in their zeal to claim that acceptance and accommodations will resolve all of the problems autistic individuals have, no matter how severe their disability is.

Ms. Lutz writes about a woman who claims that parents signing guardianship papers for their severely disabled adult is an abuse of human rights and tantamount to slavery.  She invited the neurodiversity proponent, Theresa Degener, to come to her home and probe her son's (IQ of 40) feelings about what his take on guardianship is and if it is violating his human rights.

Current ASAN president Julia Bascom answers the comment of parents who state that if they could blog as well as she could they'd consider their child cured.  Ms. Bascom inquires if they had ever taught their severely disabled child to write a blog post or given them the correct tools and accommodations to do so.  She seems to believe that any given child, no matter how gravely disabled, regardless of no matter how nonverbal or severely retarded they are is capable of writing a blog post the way she does.  The only reason they can't is because their parents presumed incompetence and failed them.  Ms. Lutz has invited Ms. Bascom to come to her home and work with her son and teach him to write a blog post.  To the best of my knowledge, no member of neurodiversity has done so.  They have only produced a phony baloney PSA video with a nonverbal autistic girl as a cartoon character. showing her typing on a computer with all ten figures, as fluent in language as any non-autistic person, expressing her dislike of autism speaks.  I echo Ms. Lutz's sentiments that if the ND's really have some method for training and accommodating a low functioning nonverbal autistic person that they should stop being so selfish and share it with her and the rest of the parents.  I wonder if Ms. Bascom has accepted her invitation and if no why not?

The most interesting example of all was of the ubiquitous John Elder Robison  who wrote a piece in response to parents who he claims are not presuming competence in their very severely handicapped children.  At an IACC meeting Ms. Lutz asked about housing options for her severely autistic son.  Showing his typical insensitivity and ignorance of the problems of severely autistic individuals he asked Ms. Lutz why her son could not choose where he lives.  In a ROFL example, Robison stated that his dogs are perfectly capable of choosing where they live.  They just roll on the floor and sleep where they want.  Somehow trying to find a group home does not seem to be the same thing as a dog just sleeping where he wants on the floor of a house he already lives in.  Likewise, Ms. Lutz extended an invitation to JER to visit her home and meet her son and ask him where he wants to live.  I wonder if JER has accepted her invitation and if the answer is no, Why not?

I admire Ms. Lutz for her polite responses and her polite challenges to neurodiversity proponents to do something which she knows they are not likely capable of doing.

However, unlike Lutz, I'm autistic, have worse social skills, and am probably older than she is and certainly grumpier, so I'm going to be more blunt.  Theresa Degener, Julia Bascom and John Elder Robison, if you truly believe all these things, then I suggest you put up or shut up.  If Ms. Degener can get inside the mind of an individual with an IQ of 40 and ask him about guardianship, if Julia Bascom can teach him to write a blog post the way she does, and if Robison can have discourse with her son about where he chooses to live, then all the power to them.  If not, I suggest they shut up and abandon this farcical crusade known as neurodiversity.     

Wednesday, April 26, 2017

Are autistics lazy loafers who refuse to work when they can?

As regular readers of my blog know, I've been unemployed for ten years now.  Though I don't know the exact statistics for autistic unemployment I've seen figures bandied about as high as 85-90%.  As the flurry of autistics who were diagnosed in the nineties have become adults, the problem of unemployment among autistics in recent years has become widely publicized.  Parents of these children have become so desperate to find them jobs, that they've influenced major media outlets such as The Wall Street Journal, New York times and others to state that autism is such a great gift to humanity that employers should be begging autistic people to work for them.

This is in part due to autistics supposed superiority in attention to details based on the urban legend that autistics have a superior aptitude for finding embedded figures.  This is despite the fact that the majority of published literature shows no superior facility in this, particularly in those at the higher end of the spectrum.

There is one instance in which retired blogger "the autistic bitch from hell" alleged that autistics who don't work are basically welfare bums who fight efforts by social justice warriors to end job discrimination because they fear losing their government benefits.

Therefore I was interested to read a poorly written article filled with grammatical and spelling errors  by someone named Ron Sandison who states that he's on the autism spectrum even though he has two jobs, including being a professor of Theology and is married and has a child.  He talks about having met Temple Grandin and quotes her as saying that autistics should get off their butts and get a job.  She agreed to attend Mr. Sandison's presentation after he told her about his two jobs.  She stated that there were too many autistics who would not get out of the house and get a job.  She spoke of a 16 year old boy who had never done his own shopping and stated that she was glad Sandison's mother had not babied him the way this boy's mother had.  It seems that Grandin, along with some of other more unsavory members of the ND movement are still trying to bring us back to the Bettelheim era which my parents and I actually lived through.  I was intrigued by this passage in Sandison's piece:

also loved her quote, “Young adults with autism—need to get their butts out of the house and get a job! Work experience can start small walking dogs in the neighborhood or mowing lawns.” When I was fifteen-years-old my dad helped me get a job as a dishwasher at Bell Knapps. I developed social skills and manors (sic) by working in the hospitality industry.

I was recently in a facebook interaction with one individual who commented on this article and stated he admired Temple Grandin and extolled her virtues stating that he supported himself and autistics should work.  I commented that it was easier said than done and another told me I should try.  I pointed out to this individual that I did try like hell for 28 years but was fired from so many jobs and had so many problems I ended up retiring ten years ago at age fifty-one.  He called me a quitter and an enabler and I blocked him.

I'm not a bum and a slacker, I worked in many jobs, had serious problems in most of them before I gave up.  I went to college and could not do well enough to go to graduate school and get a career in psychology or brain research.  I tried to study computer programming and computer repair, but was too disabled to become proficient enough to earn money from them.  I later learned medical transcription.  Though I was good enough at it to work sporadically in clinical transcription (which was easier than hospital work) I had a very hard time on jobs and got fired for making errors and having difficulty getting along with management and sometimes co-workers.  I was able to do one job where I transcribed discharge summaries and history and physicals and consultations, but not usually operative reports, which makes up the bulk of hospital transcription for more than nine years.  I only retired when I got fired from two jobs after this one ended. To imply that I did not try my best is an outrage.

One other man with autism I know tried to work and was fired from a variety of jobs.  He finally had a job at a Home Depot where he had to transport shopping carts back and forth and was fired for doing this with a water bottle in his hand.  They probably did not like his loud voice and hyperactive movements.  Another individual with a math degree I know tried to become an insurance actuary and failed the exam twice.  He later enrolled in a masters degree program hoping to get a job teaching math in a community college.  He was so stressed by the workload he had to drop out after half a semester.

One of the most interesting stories is someone I know worked at Mindspark, one of those companies that you hear so much about in the media that teaches autistic people to be software testers because of their alleged attention to detail.  After working there for a year as an apprentice tester, he was not promoted to an analyst tester and was fired because he had not learned the job fast enough.

I just want to say I believe Grandin should not be so arrogant and insensitive to the fact that very few autistics function at her level and most of them are not going to be able to go out and work very easily.

Since Sandison is extolling her virtues in his article, I can come to the conclusion that he echoes her sentiments and believes that I and other autistic people are lazy loafers who are not trying our best.This is interesting given the fact that Sandison did such a lackadaisical job of proofreading his own writing by spelling manners as manors, omitting commas where they are supposed to go and writing In her message she continually stressed that (in)individuals with autism, academic skills will be uneven.where he omits the word 'in' where it is supposed to go that I pointed out in the paranthesis

Mr. Sandison if you happen to read this I want to say that you should not be implying that I and others on the spectrum who can't be professors or work with psychiatric patients and get married and have a child are lazy because we are much more severely autistic than you are.  I also don't think you should be implying that I and others are lazy loafers when you are too lazy to even proofread your own writing and take pride in it.  Since you're a theologian, I'll remind you of the words of Christ: Only those without sin should cast the first stone.

Addendum: I see since I wrote this blog post that Autism Speaks has has gotten into the act and published Sandison's post as a guest blog. So all the things I've said in this post about Grandin and Sandison go for them too.