Wednesday, February 18, 2015

Newsweek gives Gadfly equal time more than five years later.

Old time readers of Autism's gadfly may remember when a newsweek article about Ari Ne'eman and neurodiversity came out.  In response to this, I asked Newsweek to give me (or some other pro-cure person on the spectrum) equal time to rebut what Ne'eman said.  I was further dismayed when journalist Claudia Kalb questioned why anyone would be opposed to Ne'eman's nomination to the NCD.  This particular article generated some controversy when I got some inside info on it from a reliable source telling me about it  before it was actually published.  I blogged about it.  Angry anti-neurodiversity blogger John Best also blogged about it with the inflammatory headline "Ask Newsweek to Kill Ari Ne'eman"  When a commentor on his blog stated he felt the title was inflammatory, Best stated that he was not asking anyone to actually go out and shoot Ne'eman, but he believed that Ne'eman's activities were criminal and he hoped that the neurodiversity activitist would be prosecuted, convicted and executed.  This created a hornet's nest among the ND movement, who distorted the facts and claimed that Best actually threatened Ne'eman with death.

I'm happy to report that in the better late than never department, Newsweek has given me equal time I won't comment further except to say I'm glad they are willing to let voices of those on the spectrum other than those who believe in neurodiversity be heard.

10 comments:

Kaylee said...

Hello, Jonathan. My name is Kaylee. I am 25 years old, from the UK. I have Atypical Autism PDD-NOS, I also have a Rare Chromosome Disorder among other medical issues. All theories are based from my Chromosome Disorder as to why I have these various issues.

Now, while I don't quite agree with your stance on Neurodiversity, I can certainly understand where you are coming from. I get the frustration when trying to interact with others, not knowing when you're being rude, or not getting any social cues and so on. I totally get that!

Now, me I am comfortable with my Autism, it may not be all of me but it is a part of me and I wouldn't know any other way to be. But I understand those who would rather it never existed, at least not in them. Now I believe if there ever will be a cure, it should be down to choice, for those who can make it.

I have much more I would love to discuss with you, but it may be a little long winded here ;), and I am always around if you ever need a chat. Contact me at my email, Sharance@outlook.com

All the best,
Kaylee

Jake Crosby said...

Congrats Jonathan!

JediKnight2- AKA Adam said...

As I commented on Facebook, great article! It's fantastic getting the opportunity to share your stance and the truth as to what goes on in reality for some disabled people, especially from someone I've known online for YEARS and have met in person.

If you see my comment, Julia (you know who you are), based from deciding to check Jonathan out if you came across the Newsweek article, please ask him or Stephen Shore for my email!!! If you don't know Steve's email address, just google him and you'll find it on his site!

Roger Kulp said...

Not a bad article.Maybe it might help you get your book published.It makes me wonder how many people in the media have read all the comments I have posted here,and at other blogs around the web.Here I am only a few years younger than you,but I have very successfully treated my autism,to the extent that three prominent doctors/researchers have both become very interested in me,and have become my doctors.

I am sort of a medical wonder.No one believed autism could be treated medically in anyone as old as I am.

Kaylee,and anybody else,if you come back and read the comments,I did not set out to treat my autism.I set out to learn the cause of a lot of mysterious,and severe medical problems I had lived with almost all of my life,and treat them.I foolishly believed they were unrelated to my autism.I have learned much in the last six years.

It turned out I had a lot of metabolic problems,and a secondary immune deficiency,which is now coming together to form a metabolic disorder that involves at least four separate metabolic pathways,with Cerebral Folate Deficiency as a main feature.You can read about it here.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4073259/

Treating some of the medical problems,particularly those related to folate and B12 metabolism,also treats the autism.Something some in the neurodiversity would freak out about if they knew about this.Neurodiversity always wants to separate the autism from the medical problems.This goes against everything science has taught us so far.The body is very complicated.Everything is interconnected.Many immune and metabolic pathways directly impact the brain,and can influence behavior.

This is a syndrome where the clinical picture is still evolving.It is all out there on the fringes of autism medicine and science,but needless to say,treating the CFD,can result in astounding treatment and reversal of autism,if this is indeed the cause in you or your child.But extensive testing is needed to learn if this is indeed the cause.There are many medical issues that go with this condition.It is not simple autism.

There are,of course,many causes of autism.We need to talk about "the autisms" not "autism".We really do live in a very exciting time as far as autism research is concerned,and most of it is ignored by the media at large.

If anybody from the media reads this,and wishes to contact me about my treatment,leave a comment with your contact information.

M.J. said...

The article was pretty good except for the constant faux balanced reporting. Kudos for getting it published.

jonathan said...

thanks MJ, sorry to see you retired from blogging.

Don Cuthbert said...

Jonathan,
I just read the Newsweek article about you. Since you are interested in finding cure or treatment for autism, I am wondering if you have heard of what is being done with chlorine dioxide as an autism treatment. Of course this approach is met with opposition from the same groups who oppose your stance on autism, but this has not stopped thousands of families from many nations from finding a means to recover both adults and children from "the symptoms known as autism".

Since chlorine dioxide (CD) is simply an oxidant with some unique properties that make it safe for healthcare uses and drinking water treatment, it only affects autism symptoms by killing off microbes and other pathogens, such as parasites. Toxins from these undesired organisms seem to cause autism symptoms. Autism symptoms begin to vanish, both in adults and children, through the use of diluted solutions containing chlorine dioxide, along with diet improvements that also contribute to improved gut health. This concept treats the cause, rather than symptoms, reulting in permanent improvements.

If you or any of your readers are interested in pursuing this alternative healthcare approach to recovering from autism symptoms, there is a forum at http://cdautism.org/forum that you could join to see what is being said by parents and others who are having dramatic success with it.

Don Cuthbert

jonathan said...

@Don, I don't know anything about chlorine dioxide as an autism treatment, but I'm rather skeptical as I am about most things alleging to be an easy fix for autism spectrum disorders.

Don Cuthbert said...

@jonathan,
Well I was skeptical as well, especially after reading about Jim Humble and his "church" idea that he decided to use to promote CD use and other similar things. But after reading other parents success stories on Facebook about it and doing enough research to know that it was at least safe enough to try, we told my step-son about it and he insisted on taking it ever since.

His recovery has been dramatic and we have been able to document his improvements. We recently did some travel for about 2 months, during which time he could not take these treatments and he gradually did worse without it and was very glad to get back on it upon our return. Once he was treating himself again he again improved greatly. He is 18 years old and 6'2", so quite a big man now.

Caroline Hearst said...

@ Don Cuthbert,
I tried going to the forum you suggested but it was members only. On the one hand I do think there are medical issues associated with some autisms and if they are addressed it seems some "autistic" features also resolve.
However I think the best way forward for autistic people is to remain open minded and accept our autism as a condition that we need to learn to understand, adapt to and live well with.

I am afraid I no longer necessarily trust all positive reviews of treatments and I don't believe any work for everyone (although I do think some that fail for most are spectacularly successful for a few) - it is not too difficult to find people prepared to post positive reveiws for a variety of reasons.