Thursday, May 22, 2014

Barack Obama, you sure do have your nerve

On reading Manuel Casanova's Cortical Chauvinism blog today, I see that Barack Obama has written a letter concerning autism. Here's the letter, addressed to attendees of the International Meeting for Autism Research, in full:  

The White House Washington May 7, 2014 

I send greeting to all those attending the International Meeting for Autism Research (IMFAR). Millions around the world live on the autism spectrum, including 1 out of every 68 American children. Those affected are our family members and friends, colleagues and neighbors. We all can play a roe in supporting those living on the autism spectrum and their loved ones. Occasions like the IMFAR provide a special opportunity to share the latest findings in the science of autism, which have the potential to improve the quality of life for those with autism. By uniting researchers from across the globe, events like this pave the way for breakthroughs in detection, intervention, and education that can help those affected better prepare for their bright future. I thank the scientists and medical professionals advancing our understanding of the autism spectrum. I am deeply grateful to all those who dedicate themselves to promoting the health and well-being of others, and I wish everyone gathered all the best for a productive, rewarding event. 

Barack Obama

All I can say to the POTUS in response to this letter is that he sure does have his nerve writing this.

First off, the 1 out of 68 of every American children is an inaccurate statement.  That number only refers to the year 2002 birth cohort that the CDC's prevalence reports recently published.  Even in this cohort, it is highly unlikely that every one of those kids was autistic.  They did not have to have a formal diagnosis to be counted in this survey.  A variety of records were reviewed, including school records.  If there was anything that suggested the child had autism, they were counted in the survey.  They did not enlist clinicians to confirm the child had autism.

The really nervy thing about this letter is the fact that Mr. Obama has appointed so many members of the neurodiversity movement to various government posts and the funding of their research.  He appointed someone 21 years old who has said a cure for autism would be morally reprehensible.  This individual has never worked a day in his life and he stated that one of the solutions for reducing unemployment in autistics is to eliminate social pleasantry as a criteria for hiring and evaluating a person's job performance.  He appointed a high school dropout to both serve on the IACC as well as review scientific grants for the NIMH.  This person has said that to a large extent the disability of autism is just a social construct.  He also stated that he believes the 4:1 male to female ratio of autistics is the result of parents having sons as their first borns and daughters not having a chance to catch up.  He's also appointed an individual who has compared parents who want a cure for autism to the Ku Klux Klan.
He funds the research of rogue scientist Morton Gernsbacher who has opposed a cure for autism and has stated that rhetoric such as 'suffering from autism' is offensive

Barack Obama, I realize you'll never read this, but I just want to say to anyone who may happen to read this you sure do have a lot of nerve writing this letter.  You don't care that  many persons on the spectrum such as myself and members of their families suffer tremendously from this affliction.
  

3 comments:

Roger Kulp said...

Interesting.Where do you find out how they figure out the autism rate?I sort of thought it was done with medical records,surveys of doctors,psychologits,and such.

As far as Obama is concerned,Obama is a politician.Politicians are expected to be two faced,regardless of party or ideology.That's what they do.

jonathan said...

Roger here's the link to the CDC's autism monitoring surveillance report where the 1 in 68 number comes from: http://www.cdc.gov/mmwr/preview/mmwrhtml/ss6302a1.htm?s_cid=ss6302a1_w

It is done through accessing health records and school records. Many of the persons in this report were not formerly diagnosed with autism. If the epidemiologists from the CDC found something in a school record that suggested one of the children born in the year 2002 had autism they counted them as autistic.

Roger Kulp said...

The neurodiversity movement not only ignores autistics with intellectual disability,they are also woefully ignorant of the discoveries that have been made in the last dozen years or so,of diseases that are pretty much unique to autism.I have been getting some results coming in the last couple of days from my last round of tests,and it's looking like I will be getting a second neurometabolic diagnosis in addition to CFD.This is a mitochondrial disorder,unique to both autism and CFD,called Complex IV Hyperfunction.Dr.Frye at Arkansas Children's Hospital published the very first article ever about this type of mito in 2011.I knew there was something else going on besides CFD,but I thought it was some other metabolic stuff.This comes a year and a half after one of the top autism/mito specialists told me it was impossible for an adult autistic to have mito.It's obviously very rare.I am truly unique.

Unlike neurodiversity,researchers and doctors do not talk about these diseases as being apart from autism.They talk about those who have these diseases as a subpopulation of the greater autism community.