Lately, there has been some controversy concerning the fact that not a single person on the autism spectrum is on the board of autism speaks or has no position of power there. Ordinarily I would agree that this is a legitimate beef. It would be good if someone on the spectrum could add some input and I feel at least some persons on the spectrum (myself included at the risk of sounding arrogant) who are in favor of AS's stated goal of curing and preventing autism might make good candidates for board members. Besides myself, some possible choices would be this lady who calls herself Droopy, who is nonverbal, but is very articulate using a keyboard. Another good possible choice would be Tom Mckean. Also Marty Murphy is another possible candidate.
However Lisa Jo Rudy of the autism about blog seems to have some other persons in mind. She suggests Temple Grandin, Stephen Shore, Ari Neeman, John Michael Carley and Michelle Dawson. Not a single one of these five persons is in favor of curing autism yet for some reason that is beyond my comprehension Rudy seems to feel that these five should be considered for an organization who is in favor of curation and prevention when all of them have publicly stated they are adamantly opposed to this notion. Two of the five have asperger's rather than autism and would not even have been diagnosable as autistic during their childhood based on the diagnostic criteria that was extant during that time. Shore already serves on the IACC for some strange reason I can't fathom when he is against a cure for autism yet the IACC was created out of the combating autism act which states curation and prevention are goals.
Michelle Dawson, works in the laboratory of Laurent Mottron which receives funding from autism speaks in spite of the fact that in some of her writings she makes it quite plain how much she despises this organization, yet she continues to work in this lab and has not resigned in protest.
Should members of the Ku Klux Klan be appointed to serve as board members of the NAACP. How about if the DNC just to be fair puts five republicans on their board of directors, after all the fact that they are all democrats must be unfair to the republicans.
It seems to me that most if not all of the people who complain about no autistics on the board of autism speaks are those with a neurodiversity agenda who are opposed to a cure and prevention and seem concerned that research funded by AS will someday lead to selective abortions of autistic fetuses.
Could these people have an ulterior motive for serving on this board. It seems there is a pattern among at least some persons in the ND movement to attempt to hijack the capital of others who have worked hard to earn it. Bob Wright worked very hard to acquire the capital for AS so his grandson might have a slim chance of a decent life that the ND people want to seem to deny his grandson in the unlikely event a cure or at least some other treatment from AS's scientific research were found in our lifetime. Ditto for the persons who donated money to AS and organized the walks and walked so that their children and relatives could have a chance of a better life but have been called eugenecists by people who seem to think they should serve on their board. Michelle Dawson has advocated that scientists who do not agree with the agenda of AS apply for research grants there. Ari Neeman and others in the ASAN have urged persons to request things from the IACC which grew out of the combating autism act a law which they made very plain that they did not like and which they attempted to prevent congress from passing. Yet they want to take advantage of this law they don't like.
It is quite possible that the ND movement just wants to take over the large capital of AS, as they are a movement whose numbers are too small to raise sufficient capital to start their own organization and fund raising efforts.
When I suggested that as a person on the spectrum who wants a cure for autism that I should be on the board and that if i were running the show the funding the lauren mottron lab receives from AS would be discontinued since they employ Michelle Dawson this nasty neurodiversity hatemonger who calls themselves alyric who is apparently a pal of Dawson's berated me saying that what i was doing was malicious spite and made the nasty and abusive personal attack that my minder did not teach me any manners.
I think it is likely that an AS board member who agreed with the cure philosophy who was autistic would be called a token autistic and a house autistic and would result in the ND anticure movement starting yet another internet war on top of all the others they seem to have a proclivity to start.
Ms. Rudy's suggestions for board members clearly baffle me and I hope that if there is an AS board member on the spectrum they will not be drawn from the ND crowd.