tag:blogger.com,1999:blog-8353442983052145851.post6259128517175983986..comments2024-03-14T18:26:18.208-07:00Comments on autism's gadfly: Autistic self advocacy Network's new fundraising campaign jonathanhttp://www.blogger.com/profile/14972394536850151087noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-8353442983052145851.post-1650325281280064432018-01-03T14:53:17.956-08:002018-01-03T14:53:17.956-08:00As an autistic person, don't assume that non d...As an autistic person, don't assume that non disabled people should have more priority in organ transplant than autistic people. Some autistic people who need an organ transplant can take it themselves and they should not be denied the right to live because of unsupported fears that they may not be able to take care of themselves.<br />I do support ASAN and I stand with them. It's a fact that some autistic people can take care of themselves and they have the right to do so as much as they can. For example if a high functioning autistic person wants to go somewhere where his father does not what him to go. Then the father might report him as missing and say his autistic son eloped.I believe That autistic person should have the right to go wherever he wants as long as he is deemed to be able to make decisions appropriately. I think it's morally justified to allow such people to do so. Some autistic and mentally disabled people can actually take care of themselves and have the right to do so. We have to change society's notion and perception on whether developmentally disabled people should be allowed to take care of themselves. I do acknowledge that everyone needs help, but only what is necessary.Anonymoushttps://www.blogger.com/profile/11164918871052014643noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-87990525392458910672016-01-14T01:53:39.108-08:002016-01-14T01:53:39.108-08:00I've really enjoyed reading this article, than...I've really enjoyed reading this article, thanks for sharing. I have recently discovered <a href="https://plus.google.com/114959994964675966307/about" rel="nofollow">Listen Ltd</a> and the great fundraising work that they have done, you should check them out!<br />Anonymoushttps://www.blogger.com/profile/00749806048126396306noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-18358984572841051652015-04-01T16:18:36.124-07:002015-04-01T16:18:36.124-07:00Roger, that is all very interesting and I am glad ...Roger, that is all very interesting and I am glad she got her kidney. if the mother is so concerned, I agree, she should act as the donor as she will be able to live with one kidney, though maybe shewill need dialysis, I don't know. <br /><br />You know at least as much as I do about who and who isn't self diagnosed at ASAN, I really don't know the details, I wish I did. I've met and heard of a few people that are self diagnosed and defend it, but it's been rare. <br /><br />Actually, ASAN has done work on providing better access to medical care for autistic people, though I don't know the circumstances. I guess renal and cardiac diseases are looked upon as diseases by them, whereas autism is not. Of course, they'll always have something to be angry about. jonathanhttps://www.blogger.com/profile/14972394536850151087noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-43162830176065625592015-03-31T21:13:49.679-07:002015-03-31T21:13:49.679-07:00@Shanti this I think is the case that started ASAN...@Shanti <a href="http://www.nydailynews.com/life-style/health/23-year-old-pennsylvania-man-autism-denied-heart-transplant-hospital-article-1.1137708" rel="nofollow">this</a> I think is the case that started ASAN's crusade. I think this guy is high functioning and could follow instructions but i'm not sure, there were a variety of issues why he was denied. The article also said there are cases of persons with autism who get organ transplants. However, my main point in the post, was that these issues are far more complex than ASAN (and other members of ND) will acknowledge, and they just use this as an excuse to spread their hate and fear mongering. jonathanhttps://www.blogger.com/profile/14972394536850151087noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-57323520182788614092015-03-31T19:21:28.650-07:002015-03-31T19:21:28.650-07:00I have heard that autistic people as a group are n...I have heard that autistic people as a group are not denied transplants, but if person cannot communicate with a medical professional that could hinder the success of a transplant and planning follow- up treatments. At the same time, babies are given transplants and they cannot clearly communicate. Violent felons are given organ transplants. There should be some open discussion about this so we have all the facts. If it is just a 'quality of life issue' and violent felons are seen as more worthy than autistics, that's just wrong. Shantihttps://www.blogger.com/profile/02883998251023232407noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-18468854978971627052015-03-31T19:16:05.352-07:002015-03-31T19:16:05.352-07:00I have mixed opinions I think restraints are neces...I have mixed opinions I think restraints are necessary for safety but denying an organ transplant is not.willienoreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-77313209223801641462015-03-31T11:01:34.357-07:002015-03-31T11:01:34.357-07:00thanks for the heads up abourt that post, Lucia, I...thanks for the heads up abourt that post, Lucia, I'll definitely read it and maybe write an addendum to this post. jonathanhttps://www.blogger.com/profile/14972394536850151087noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-38307982065054241022015-03-31T09:55:16.184-07:002015-03-31T09:55:16.184-07:00Actually, according to a blog post by Autistic Hoy...Actually, according to a blog post by Autistic Hoya, disabled people are actively being denied transplants because of their "quality of life."<br /><br />http://www.autistichoya.com/2012/01/life-not-worth-living.htmlLuciahttp://ableistwithdisabilities.tumblr.comnoreply@blogger.com