tag:blogger.com,1999:blog-8353442983052145851.post5169262828583109123..comments2024-03-14T18:26:18.208-07:00Comments on autism's gadfly: Silberman's play of the refrigerator mother card and my one star review of neurotribes jonathanhttp://www.blogger.com/profile/14972394536850151087noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-8353442983052145851.post-43345453907495105132015-09-24T23:25:52.638-07:002015-09-24T23:25:52.638-07:00Even if it is all possible to eliminate all the &#...Even if it is all possible to eliminate all the 'social constructs' that society supposedly 'disables' those with disabilities, there's that great big factor that no body dares mention; Human Nature. Just because someone with down syndrome can maybe get a job with Target say with said accommodations, doesn't exactly mean people are more likely to accept that same person in that work environment, as people only want to associate with those socially equal or higher than they are.& with that hypothetical person with down syndrome will obviously be not accepted because he happens to be lesser abled than his co-workers. Even if society could re-arrange itself to be more accommodating of disabled people, that still no way guarantees the qualities of lives of disabled people will be any better because as I said, 1 of the laws of sociability is people will only accept those whom are seen as equal or above. Sorry to sound so shallow, but it's best better to face reality for what it is, not what we like it to be.<br /> Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-47523522548664013582015-08-28T18:35:53.147-07:002015-08-28T18:35:53.147-07:00In some ways some of us "naive high-functioni...In some ways some of us "naive high-functioning adults" on the Spectrum may be worse off than Mark Rimland, with respect to Mark Rimland, and his family. If he is obviously handicapped, as you pointed out, NOBODY is likely to accuse him of faking his condition, the way many of us are accused of doing We don't explain ourselves under stress, or with skeptical people, at least I don't. For years, I just thought if I followed the program, as it were, I'd be all right. I did not know that this doesn't go away, as we grew up. I myself STILL need people to bring me out of the rain, perhaps even more so, (now, as the society and it's mores, expectations, and so on, not to mention the technology, have changed beyond recognition), and I'm pretty smart--or at least I was, before what appears to be stress on top of stress, including enough medication trials for me to become a lab rat. I think I heard also that repeated Cortisol secretion can be permanently damaging to the brain. possibly to the nervous system as well. WE seem to be paying the costs of our society's, and, the medical professions' errors, As Marx is supposed to have said about the Proletariat, or the Lumpenproletariat, but enjoying few of the benefits.--and I'm not a Marxist, though he made some interesting observations. I am completely burnt out at this time, and feel increasing Anxiety, because I KNOW things are messed up these days. I feel no creative bent anymore, except occasional flashes. I don't think, in my case, being on the Autism Spectrum is all of my problem--it's apparently like one part of the elephant, and there are others, such as what I'm sure is ADHD, except they didn't call it that--I'm almost as old as you are. Also, I am observing my mother rapidly age, and I know I haven't built networks the way others say I should have. It's not that I didn't think they were important, but I do not have the knack for it. I know this is quite long-winded--I don't have these conversations with too many people, and it's not a very "conversational" subject. As for "identity politics", I agree that it probably doesn't work to try to shoehorn Autism, or people diagnosed with it, into a "minority community. Many of us are not "joiners", and shouldn't be expected to be. Peace.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-30732095369073614302015-08-27T19:06:00.037-07:002015-08-27T19:06:00.037-07:00Lurker I agree Lurker I agree jonathanhttps://www.blogger.com/profile/14972394536850151087noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-32244127825298719652015-08-27T18:38:57.370-07:002015-08-27T18:38:57.370-07:00When they keep mentioning services and accommodati...When they keep mentioning services and accommodations repeatedly after dismissing efforts to really solve the problem, I don't think these advocates would guarantee serious fulfillment in life or participation in societal institutions, although they want others to assume they would, but rather would only care for basic needs to stay living, regardless of the levels of comfort or lack thereof which may accompany the living conditions settled for by those advocating for them. Of course, they still will distract those they indoctrinate with the handfuls of success stories which came to fruition without closely supervising caregivers. They are too willing to keep a large majority of those on the spectrum reliant on the charity of their communities and society, which is only available at the convenience and decision of those in the positions to help.lurkerhttps://www.blogger.com/profile/14926254116447529725noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-19210258014053676442015-08-27T14:44:51.303-07:002015-08-27T14:44:51.303-07:00He does not touch upon the issue of self-diagnosis...He does not touch upon the issue of self-diagnosis. I don't think anyone is going to admit to self-diagnosis and it is unclear who and who isn't self-diagnosed among ND's. Many of them did get a diagnosis late in life, after their children were diagnosed who don't seem to be impaired such as michael john carley. Liam willey was self-diagnosed at the time she wrote and published "pretending to be normal" and later got a diagnosis from Tony Atwood so the book would have credibility. I don't recall him talking about the anti-psychiatry movement, but it's true it seems to be a predecessor to the neurodiversity movement and said similar things. <br /><br />Having met Mark Rimland, I don't think he really has the functioning level or ability to carry on an adult conversation where he could be interviewed, though Silberman did spend time with him and his family and Steve Edelson who was rimland's heir apparent after he died and now runs ARI. that's why I found it so offensive that he would claim that the support Mark has received in the community is better for him than a cure would have been. <br /><br />You're probably right about Silberman not knowing about Frye and the metabolic treatment of autism, though I suppose you could contact him and ask him, though I have not corresponded with him in quite some time and i'm not sure i have his current email. jonathanhttps://www.blogger.com/profile/14972394536850151087noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-40992822488568325312015-08-27T10:25:10.370-07:002015-08-27T10:25:10.370-07:00I would rather say that most of the “autistic” peo...I would rather say that most of the “autistic” people Silberman wrote about in his book were classified as “autistic” (or inserted arbitrarily in the Spectrum) not because of neurological causes but because the authors of the DSM really screwed-up when they constructed a mental disorder without having a clue about the social context in which Dr. Hans Asperger wrote his paper in 1943.Claudia Mazzuccohttps://www.blogger.com/profile/09475625910961150508noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-3993748310061847922015-08-27T04:39:44.060-07:002015-08-27T04:39:44.060-07:00http://alexplankcase.blogspot.com/
Alex Plank com...http://alexplankcase.blogspot.com/<br /><br />Alex Plank complicit in murders and suicide committed by William Freund.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-10638275175197748562015-08-26T22:15:15.419-07:002015-08-26T22:15:15.419-07:00Trying to shoehorn autism into a political minorit...Trying to shoehorn autism into a political minority group, subject to all due oppression is specious at best. This is the foundation of the ND movement, and it is severely cracked. Up to two decades ago, nobody knew anybody with autism. How exactly does one get oppressed and discriminated against historically for something that rarely existed?<br /><br />This is a sham that exploits naive higher functioning autistic adults on one end, and dilettante guilty liberal politicians and autism experts on the other. It is a ruse, and an ugly one that exploits the disabled and self-despising liberals who crave the need to redeem their privilege by being sycophants to professed victims. I declare this movement <i><b>BUSTED.</b></i>schaferatsprynethttps://www.blogger.com/profile/00263422743462718045noreply@blogger.com