Ironically, right around the time of April Fools day,the federal government announced the names of the new appointees to the public membership of the Interagency Autism Coordinating Committee. This is the agency that was created under the combating autism act where members of the general public, along with federal government members are appointed to give input and vote on autism policy. In the past(though I'm not certain about now) the Federal members outnumbered the public members. They voted on what they wanted, and I doubt the public members actually had much power to make meaningful contributions.
Three of the appointees' names particularly stood out for me:
1. Matthew Carey
2. John Elder Robison
3. (Last but certainly not least) Scott Robertson.
The combating autism act was designed with the intent of actually curing and eradicating autism. I'd like to discuss the incredible incongruity of appointing these three individuals to this position.
Nearly three years ago, I wrote a blog post explaining why I did not believe that members of the neurodiversity movement should be allowed to be heard by the IACC. This was in response to a post one of the three aforementioned appointees wrote.
Now in what I hope was either an early April Fools joke or a nightmare from which I'll awake tomorrow morning, it's happened. We now have three individuals from this movement who are not only being heard by the IACC but are actually on the board themselves.
Matt Carey, AKA "Sullivan", is at least a somewhat pro neurodiversity blogger who has a propensity to make numerous factual errors in posts that try to rebut those of us who have an intense dislike for the neurodiversity movement. He has gotten it wrong on special education law, gotten it wrong on whether or not Ari Ne'eman said that autism was not a disability and gotten it wrong about a certain individual who does not like ND, falsely claiming this person threatened Ne'eman with death. Carey has consistently stated the strawman that those of us who don't like neurodiversity are against civil and human rights. As this is one of their standard lines, I won't bother to comment on the absurdity of this. Carey has been very pro special ed and the IDEA law, yet apparently is against curing autism. He apparently believes the taxpayers should foot the bill for his son's disability which he is opposed to curing.
John Robison is another individual who has stated there is no need for a cure for autism. To his credit, he has acknowledged that autism is a disability that needs research for remediation. Though quite wealthy, he has accepted funding from autism speaks for his son's and Alex Plank's autism talk TV, while most persons with autism are crippled and sick and languish in poverty. He has suggested studying geek success as a legitimate scientific endeavor. He seems to either not understand that a newborn has a nearly equal chance of being a boy or a girl or comes up with some strange theory that parents of autistic children are at least four times more likely to have a son as their firstborn and then an equal chance of either sex with subsequent children. Though he has not even completed the tenth grade in school, he serves on scientific advisory boards with M.D. and Ph.D. scientists. Most notable of all, his friend, Alex Plank, whom he has helped secure funding for, has stated that autism is a good thing. So, though Robison has stated that many facets of autism are disabling and need research for remediation, I wonder if we can judge him by the company he keeps.
As I said before, last but not least is Scott Robertson, one of the top executives in the autistic self-advocacy network, second-in-command to Ari Ne'eman. Though ASAN has publically opposed the combating autism act, they apparently feel it is okay to be the beneficiaries of tax dollars paid for created out of a law that they disagree with. They have stated that curing autism (the purpose for which the combating autism act and the IACC which they now have a seat on was enacted) would be morally rephrensible. ASAN or their representatives have used murder of autistic children as a political tool, they have stated that autism and Asperger's are not disabilities, and they have implied that autistic people who are unable to hold jobs who disagree with what they are doing are welfare bums who in their words should be strangled to death and turned into cat food or taken out, lined up against a wall and be shot.
To date, not a single person on the spectrum who favors curing autism has been appointed as a public member of the IACC. Though it would seem we are the primary individuals for whom the CAA was passed by congress and signed into law by two different presidents. I wonder why Kathleen Sebelius and other powers that be, think that these individuals are better suited for the job than we are. Guess because of my disability, there are just some mysteries that I'm not sophisticated enough to understand.
Monday, April 2, 2012
Wednesday, March 28, 2012
Software company stereotypes those with autism and says it's okay to exploit them
As originally reported on the autism jabberwocky blog, The Los Angeles software company, Square One, is in the process of trying to help three different autistic people find employment as software testers. They have a pilot program in which these three people will be trained.
This has been reported in a business week article.
The article starts out with the annoying stereotype of all autistic people having intellectual superpowers and having savant skills and memorizing train tables and having Jerry Newport type calendar skills where they can tell you the day of the week you were born on.
Square One's efforts, however, are not unprecedented. The Danish company Specialisterne has also trained autistic people to be software testers. Another company in Chicago, Aspiritech, has employed persons with autism to test smartphone applications.
The difference lies in the fact that in socialist Denmark, which enjoys high revenue from Northern sea oil drilling, the funds were provided for this company. It is improbable that the U.S. government would fund an upstart like this. Aspiritech is currently a nonprofit company.
Square one aspires to be the first company to make a profit from the labor of exclusively ASD software testers. Is anything wrong with this? After all, it's the American way we're told. This is what happens in a capitalistic society such as the U.S.A.
However, CEO Chad Hahn states:
A lot of software testing is done overseas by workers in India. The case Hahn makes is that his software testers will work for $15 to $20 an hour—pay comparable to, or even lower than, that of software testers in India, but right here in the U.S. After all, he points out, people with autism don’t have a lot of alternatives—when they do find work, it’s usually bagging groceries or sweeping hospital floors at the minimum wage.
When Hahn was asked if he sees this as exploitive the article states:
he doesn’t see it that way. For one thing, he says, Indian software testers aren’t exactly sweatshop labor; they make about $25 an hour. And if paying less makes the company able to hire the developmentally disabled in the first place, he doesn’t see a problem with it.
“I haven’t had one parent of an autistic child come to me and say this isn’t going to work,” he says. “They say, ‘This is a way for my child to make more money than they would have made otherwise, and allow them to be more independent.’ They worry, what is my child going to do when I’m gone? And this is kind of a way out.”
The comparison between Indian software testers and American autistics who do the same thing is moot. The standard of living in India is lower than in the U.S. The Indian making $25/hour can probably live like the $75-100/hour American.
It's these kind of bigoted stereotypes and attitudes that it's okay to exploit people that help make things worse for those of us on the spectrum.
As a person on the spectrum with no intellectual superpowers or savant skills, I find the stereotypes from the article offensive.
The article stated that Hahn's wife does some sort of work with developmentally disabled people. Are the Hahns doing this out of the goodness of their hearts, or do they see some easy way to make money off the backs of those less fortunate than themselves?
I wonder how much they understand about the problems of the developmentally disabled in the workplace. Are non-handicapped employees going to put up with bad behavior and social skills. Or maybe this is a test of Ari Ne'eman's theory that social skills in the workplace don't matter.
Time will tell if this plan pans out for Square One.
This has been reported in a business week article.
The article starts out with the annoying stereotype of all autistic people having intellectual superpowers and having savant skills and memorizing train tables and having Jerry Newport type calendar skills where they can tell you the day of the week you were born on.
Square One's efforts, however, are not unprecedented. The Danish company Specialisterne has also trained autistic people to be software testers. Another company in Chicago, Aspiritech, has employed persons with autism to test smartphone applications.
The difference lies in the fact that in socialist Denmark, which enjoys high revenue from Northern sea oil drilling, the funds were provided for this company. It is improbable that the U.S. government would fund an upstart like this. Aspiritech is currently a nonprofit company.
Square one aspires to be the first company to make a profit from the labor of exclusively ASD software testers. Is anything wrong with this? After all, it's the American way we're told. This is what happens in a capitalistic society such as the U.S.A.
However, CEO Chad Hahn states:
A lot of software testing is done overseas by workers in India. The case Hahn makes is that his software testers will work for $15 to $20 an hour—pay comparable to, or even lower than, that of software testers in India, but right here in the U.S. After all, he points out, people with autism don’t have a lot of alternatives—when they do find work, it’s usually bagging groceries or sweeping hospital floors at the minimum wage.
When Hahn was asked if he sees this as exploitive the article states:
he doesn’t see it that way. For one thing, he says, Indian software testers aren’t exactly sweatshop labor; they make about $25 an hour. And if paying less makes the company able to hire the developmentally disabled in the first place, he doesn’t see a problem with it.
“I haven’t had one parent of an autistic child come to me and say this isn’t going to work,” he says. “They say, ‘This is a way for my child to make more money than they would have made otherwise, and allow them to be more independent.’ They worry, what is my child going to do when I’m gone? And this is kind of a way out.”
The comparison between Indian software testers and American autistics who do the same thing is moot. The standard of living in India is lower than in the U.S. The Indian making $25/hour can probably live like the $75-100/hour American.
It's these kind of bigoted stereotypes and attitudes that it's okay to exploit people that help make things worse for those of us on the spectrum.
As a person on the spectrum with no intellectual superpowers or savant skills, I find the stereotypes from the article offensive.
The article stated that Hahn's wife does some sort of work with developmentally disabled people. Are the Hahns doing this out of the goodness of their hearts, or do they see some easy way to make money off the backs of those less fortunate than themselves?
I wonder how much they understand about the problems of the developmentally disabled in the workplace. Are non-handicapped employees going to put up with bad behavior and social skills. Or maybe this is a test of Ari Ne'eman's theory that social skills in the workplace don't matter.
Time will tell if this plan pans out for Square One.
Sunday, March 25, 2012
New autism genetic brain growth study may refute some urban legends
I read with interest (albeit admittedly with limited understand)
the new article that demonstrates evidence for a genetic etiology for the abnormal brain growth and other anomalies in autism. Scientific American has published an overview of this work that's more understandable to the lay person (myself included) than the primary source, which I've also linked to above.
One finding that I think at least some labs have replicated is abnormal brain growth in autism. Eric Courchesne recently published a study demonstrating abnormal brain growth in the prefrontal cortex of postmortem autistic subjects and finding autistic brains have 67% more neurons in this area than normal controls. I've written about this elsewhere.
This study examined genetic pathways and defects in postmortem brains of both autistic children and adults as compared to age-matched controls.
One of the striking findings of this work was the fact that the genetic defects and how they affected the brain were qualitatively different in the adult group than in children.
The last sentence in the conclusion section of the article is particularly compelling: Further knowledge of the specific developmental neurobiological mechanisms behind the age-dependent anomalies reported here could point to distinct early developmental processes that lead to autism, uncover mechanisms that respond to early pathologies in the mature brain and suggest novel molecular targets for prevention strategies and treatment over the course of the disorder .
This study may have relevance to two well-known tenets in the autism community: 1. Early intervention makes a difference in the outcome of autistic children. The earlier the treatment is started the better the prognosis. 2. One of the main arguments of the neurodiversity movement that the term "prevention" is in reality a codeword for abortion and that genetic research in autism will only lead to widespread termination of pregnancies involving autistic fetuses. The ND movement gives the oft-cited statistic of a more than 90% abortion rate of Down's syndrome children as evidence for this. There are probably a number of problems with this argument, but that may be the subject of a future gadfly blog post.
Though the "early intervention" mantra is repeatedly chanted to parents of small autistic children by entrepeneurs financed by the IDEA law (ABA practitioners and others), to the best of my knowledge, no studies have been done linking age of intake to a more favorable prognosis or outcome.
As I've written before, I underwent psychoanalysis beginning the late 1950s. This was the intervention of choice in those days. I went from nonverbal feces smearing to mildly impaired autistic during this time period. Was it the psychoanalysis that helped me? Have ABA and other more contemporary interventions been responsible for at least partial recovery of those with autism? I believe the differences between the postmortem brains in the children versus adults as well as different genetic pathways may account for recovery in some cases. Some persons who had certain types of genetic defects as children, may not have had the as adults. Perhaps the adults without certain deficiencies did not have genes that interfered with patterns repairing neurons etc. Perhaps that accounts for recoveries rather than early intervention. Though admittedly it is speculation, I don't believe this hypothesis is farfetched.
ASAN and other neurodiversity organizations have repeatedly claimed that all research funded by Autism speaks, the Simons foundation, etc. has a goal of finding a way abort autistic fetuses. This includes fMRI studies and studies of TMS and mu wave suppression which do not appear to have any relevance to genetic research to a reasonable person. This paper may be the start of empirical evidence, that in fact, genetic research is our ace in the hole for preventing autism. No, not aborting the autistic fetus, but perhaps finding the genetic mechanisms prenatally that cause this brain overgrowth and possibly other problems the autistic may have. For this reason, I believe studies like this should be funded and it may have promising implications of being able to prevent the fetus from becoming autistic in the first place or even possibly helping those already born.
the new article that demonstrates evidence for a genetic etiology for the abnormal brain growth and other anomalies in autism. Scientific American has published an overview of this work that's more understandable to the lay person (myself included) than the primary source, which I've also linked to above.
One finding that I think at least some labs have replicated is abnormal brain growth in autism. Eric Courchesne recently published a study demonstrating abnormal brain growth in the prefrontal cortex of postmortem autistic subjects and finding autistic brains have 67% more neurons in this area than normal controls. I've written about this elsewhere.
This study examined genetic pathways and defects in postmortem brains of both autistic children and adults as compared to age-matched controls.
One of the striking findings of this work was the fact that the genetic defects and how they affected the brain were qualitatively different in the adult group than in children.
The last sentence in the conclusion section of the article is particularly compelling: Further knowledge of the specific developmental neurobiological mechanisms behind the age-dependent anomalies reported here could point to distinct early developmental processes that lead to autism, uncover mechanisms that respond to early pathologies in the mature brain and suggest novel molecular targets for prevention strategies and treatment over the course of the disorder .
This study may have relevance to two well-known tenets in the autism community: 1. Early intervention makes a difference in the outcome of autistic children. The earlier the treatment is started the better the prognosis. 2. One of the main arguments of the neurodiversity movement that the term "prevention" is in reality a codeword for abortion and that genetic research in autism will only lead to widespread termination of pregnancies involving autistic fetuses. The ND movement gives the oft-cited statistic of a more than 90% abortion rate of Down's syndrome children as evidence for this. There are probably a number of problems with this argument, but that may be the subject of a future gadfly blog post.
Though the "early intervention" mantra is repeatedly chanted to parents of small autistic children by entrepeneurs financed by the IDEA law (ABA practitioners and others), to the best of my knowledge, no studies have been done linking age of intake to a more favorable prognosis or outcome.
As I've written before, I underwent psychoanalysis beginning the late 1950s. This was the intervention of choice in those days. I went from nonverbal feces smearing to mildly impaired autistic during this time period. Was it the psychoanalysis that helped me? Have ABA and other more contemporary interventions been responsible for at least partial recovery of those with autism? I believe the differences between the postmortem brains in the children versus adults as well as different genetic pathways may account for recovery in some cases. Some persons who had certain types of genetic defects as children, may not have had the as adults. Perhaps the adults without certain deficiencies did not have genes that interfered with patterns repairing neurons etc. Perhaps that accounts for recoveries rather than early intervention. Though admittedly it is speculation, I don't believe this hypothesis is farfetched.
ASAN and other neurodiversity organizations have repeatedly claimed that all research funded by Autism speaks, the Simons foundation, etc. has a goal of finding a way abort autistic fetuses. This includes fMRI studies and studies of TMS and mu wave suppression which do not appear to have any relevance to genetic research to a reasonable person. This paper may be the start of empirical evidence, that in fact, genetic research is our ace in the hole for preventing autism. No, not aborting the autistic fetus, but perhaps finding the genetic mechanisms prenatally that cause this brain overgrowth and possibly other problems the autistic may have. For this reason, I believe studies like this should be funded and it may have promising implications of being able to prevent the fetus from becoming autistic in the first place or even possibly helping those already born.
Friday, March 23, 2012
Does an autistic's higher perceptual capacity translate into a lucrative IT career?
I've just read an interesting post on one of my favorite autism blogs, "M.J's" Autism Jabberwocky. MJ writes about an article that appeared online in Science Daily. Cognitive neuroscience Nilli Lavie has claimed that her recent study has demonstrated that autistics have superior perceptual processing capacity. She goes further in claiming that these strengths can be capitalized on and help autistics in their life activities and possibly be the stepping stone into a lucrative career in the IT industry. She goes further to claim that the findings of her research may demonstrate why so many persons with autism are successful computer programmers, network administrators, etc.
I haven't read the primary source, i.e. Lavie's actual article published in the journal of abnormal psychology, so I won't comment on the validity of her research or even whether or not it has the clinical applications that she's claiming. I'm still awaiting a single example of an autistic person who was helped by this type of research and any studies showing a benefit. This is particularly true of rogue physician and scientist Laurent Mottron who has made similar claims yet has provided no evidence of persons who have been helped by treatments based on this research, particularly an autist who made it in the IT biz. This is particularly germane given the fact this was the rationale given for Mottron's half a million dollar research grant from Autism Speaks.
I am curious as to exactly how many individuals with a bonafide autism diagnosis actually have been successful in careers in IT. I'd be willing to bet dollars to doughnuts that though there may actually be some individuals who fit the bill, they are very few and far between. I still remember my unsuccessful attempts to get into this profession, but more about that later.
One striking statement in the science daily article was that the numbers of autism diagnoses tripled in the silicone valley during the 1990s. The author of this article quotes Steve Silberman's wired piece as a source. As I said, I haven't read Lavie's article so I don't know if she herself wrote it to bolster her case and it's been a few years or more since I read Silberman's piece so I don't remember exactly what he said either. Even if there were significant increases in the rates of autism in the silicone valley, were they unique as compared to other parts of California. According to figures from the CDDS The answer would appear to be no. Though between July of 1992 and July of 2007 the number of autsitic clients the San Andreas regional center served increased from 213 to 1,798, a 8.4 fold increase, rates in some other parts of the state were no different or significantly larger. The Frank Lanterman center's number went from 209 to 1,962, a more than 9.3 fold increase. North Los Angeles Regional Center's numbers were 437 to 3,708-a fractionally greater increase than San Andreas. East Los Angeles, a relatively poor area with no IT industry went from 150 to 2,040 clients, a 13.6 fold increase. This is more than 1.5 times higher than San Andreas. Valley Mountain regional center went from 68 to 1,178 for a 17.3 fold increase or more than double San Andreas. It would appear, compared to other parts of the state the Silicone valley was hardly a bastion of growth due to IT genes or any other factor. I believe this sort of puts a gaping hole in the argument purported by those who want to use autism prevalence figures to argue for autism increases being caused by an aptitude for computer programming.
I still remember my own failed attempts to become a computer programmer. I took a variety of computer programming courses on and off in the 1980's and 1990s. Though I did learn a bit, it was nowhere near enough to become a professional programmer. Unlike the autistics in Dr. Lavie's and Mottron's studies, I was unable to concentrate or pay attention to details at anywhere near the level of a neurotypical person. Though I worked intermittently in other professions, I was fired from multiple jobs and had to quit working early on in my life.
Therefore, I don't think it's helpful for Drs. Lavie and Mottron to put up simplistic solutions to difficult problems such as that of the many autistics' inability to make a living.
I haven't read the primary source, i.e. Lavie's actual article published in the journal of abnormal psychology, so I won't comment on the validity of her research or even whether or not it has the clinical applications that she's claiming. I'm still awaiting a single example of an autistic person who was helped by this type of research and any studies showing a benefit. This is particularly true of rogue physician and scientist Laurent Mottron who has made similar claims yet has provided no evidence of persons who have been helped by treatments based on this research, particularly an autist who made it in the IT biz. This is particularly germane given the fact this was the rationale given for Mottron's half a million dollar research grant from Autism Speaks.
I am curious as to exactly how many individuals with a bonafide autism diagnosis actually have been successful in careers in IT. I'd be willing to bet dollars to doughnuts that though there may actually be some individuals who fit the bill, they are very few and far between. I still remember my unsuccessful attempts to get into this profession, but more about that later.
One striking statement in the science daily article was that the numbers of autism diagnoses tripled in the silicone valley during the 1990s. The author of this article quotes Steve Silberman's wired piece as a source. As I said, I haven't read Lavie's article so I don't know if she herself wrote it to bolster her case and it's been a few years or more since I read Silberman's piece so I don't remember exactly what he said either. Even if there were significant increases in the rates of autism in the silicone valley, were they unique as compared to other parts of California. According to figures from the CDDS The answer would appear to be no. Though between July of 1992 and July of 2007 the number of autsitic clients the San Andreas regional center served increased from 213 to 1,798, a 8.4 fold increase, rates in some other parts of the state were no different or significantly larger. The Frank Lanterman center's number went from 209 to 1,962, a more than 9.3 fold increase. North Los Angeles Regional Center's numbers were 437 to 3,708-a fractionally greater increase than San Andreas. East Los Angeles, a relatively poor area with no IT industry went from 150 to 2,040 clients, a 13.6 fold increase. This is more than 1.5 times higher than San Andreas. Valley Mountain regional center went from 68 to 1,178 for a 17.3 fold increase or more than double San Andreas. It would appear, compared to other parts of the state the Silicone valley was hardly a bastion of growth due to IT genes or any other factor. I believe this sort of puts a gaping hole in the argument purported by those who want to use autism prevalence figures to argue for autism increases being caused by an aptitude for computer programming.
I still remember my own failed attempts to become a computer programmer. I took a variety of computer programming courses on and off in the 1980's and 1990s. Though I did learn a bit, it was nowhere near enough to become a professional programmer. Unlike the autistics in Dr. Lavie's and Mottron's studies, I was unable to concentrate or pay attention to details at anywhere near the level of a neurotypical person. Though I worked intermittently in other professions, I was fired from multiple jobs and had to quit working early on in my life.
Therefore, I don't think it's helpful for Drs. Lavie and Mottron to put up simplistic solutions to difficult problems such as that of the many autistics' inability to make a living.
Saturday, February 18, 2012
autism in the workplace: Ne'eman's at it again
I've previously written about Ari Ne'eman, an individual in his early 20s who has never had paid employment. In spite of his total lack of experience working, he seems to feel qualified to give input on solving the problems of unemployment among persons with autism.
As I mentioned before, one of Ne'eman's solutions was to eliminate social pleasantry as a hiring criteria or use it to evaluate an individual's work performance. Any individual who has spent even the briefest time in any workplace knows having good social skills is necessary to be and stay employed. No employer or fellow co-workers are going to overlook poor social skills and be patient with an autistic person who shouts at them, makes inappropriate comments or gropes women in the workplace. As John Robison pointed out in the comments section, no amount of legislation is ever going to change this.
It seems that Mr. Ne'eman is at it again, giving a presentation at the autism works conference on how people with autism can get and keep jobs.
It appears, in spite of my blog post, he has not given up on this idea. He presents a concept he refers to as "social architecture", borrowing from the Americans with Disabilities Act. The analogy he uses is the legal requirement that ramps be required for persons who use wheel chairs and in the same vein, autistics poor social skills can be accommodated in the workplace.
However, this apples to hurricanes analogy indeed falls flat. Social skills aren't walking and mobility. There is no way that the autistics' faux pas can be accommodated for in the workplace as mentioned above. Ne'eman seems quite vague in how this can be done. He does not seem to provide any specific analogy for wheel chair ramps, because there isn't one. There is no treatment that can mitigate the persons social skills. All the wishful thinking in the world on Ne'eman's part isn't going to make society overlook them.
Another issue, is that lack of social ability is probably not the largest factor in an autistics' inability to obtain employment. The impairments that prevented me from concentrating on work also lead to my termination from various positions. The fact that I and others like myself are too impaired to get adequate education and training for most jobs is yet another major issue. Ne'eman and other members of ASAN with virtually no work experience don't address these issues at all in their programs to help autistics find and keep jobs.
Ne'eman is also developing a resume bank designed for college graduates on the spectrum. However, I wonder about the percentage of autistics who actually graduate college with a four year degree. I strongly suspect it's quite low. Even for those high-functioning enough to obtain this education, there may not be much on a resume that is of use as most of them are quite young and don't have much experience in the career they're trying to pursue. Ne'eman is approaching a variety of private firms and attempting to address the issues of social barriers---the only comment I have is good luck in that endeavor.
Also, the mortgage company Freddie Mac has apparently entered into an agreement with ASAN to provide internships for those on the spectrum, Interestingly, Ne'eman is claiming these internships are paid positions, which seems odd as usually interns are people who volunteer in order to get experience.
It's interesting the neurodiversity movement would pick an organization that with its encouragement of subprime interest loans to persons who could never afford houses likely helped caused the largest economic crisis since the great depression. This organization (along with its sister Fannie Mae)went broke and cost the taxpayers more than 170 billion bucks in a bailout that has never been paid back. Gee, ASAN, you sure now how to pick a winner. I suspect an association with Freddie mac would be a liability on someone's resume, not an asset as Ne'eman is claiming, though I suppose I might be wrong about that.
As an individual on the spectrum who had great difficulty in the workplace, I resent Ne'eman discussing issues which he himself has no personal experience or knowlege. I don't believe it's productive for individuals to put up a conference offering simplistic solutions to real and hard problems.
I wish Ne'eman would go out and get a real job and actually get some life experience and work experience before trying to propose remedies.
As I mentioned before, one of Ne'eman's solutions was to eliminate social pleasantry as a hiring criteria or use it to evaluate an individual's work performance. Any individual who has spent even the briefest time in any workplace knows having good social skills is necessary to be and stay employed. No employer or fellow co-workers are going to overlook poor social skills and be patient with an autistic person who shouts at them, makes inappropriate comments or gropes women in the workplace. As John Robison pointed out in the comments section, no amount of legislation is ever going to change this.
It seems that Mr. Ne'eman is at it again, giving a presentation at the autism works conference on how people with autism can get and keep jobs.
It appears, in spite of my blog post, he has not given up on this idea. He presents a concept he refers to as "social architecture", borrowing from the Americans with Disabilities Act. The analogy he uses is the legal requirement that ramps be required for persons who use wheel chairs and in the same vein, autistics poor social skills can be accommodated in the workplace.
However, this apples to hurricanes analogy indeed falls flat. Social skills aren't walking and mobility. There is no way that the autistics' faux pas can be accommodated for in the workplace as mentioned above. Ne'eman seems quite vague in how this can be done. He does not seem to provide any specific analogy for wheel chair ramps, because there isn't one. There is no treatment that can mitigate the persons social skills. All the wishful thinking in the world on Ne'eman's part isn't going to make society overlook them.
Another issue, is that lack of social ability is probably not the largest factor in an autistics' inability to obtain employment. The impairments that prevented me from concentrating on work also lead to my termination from various positions. The fact that I and others like myself are too impaired to get adequate education and training for most jobs is yet another major issue. Ne'eman and other members of ASAN with virtually no work experience don't address these issues at all in their programs to help autistics find and keep jobs.
Ne'eman is also developing a resume bank designed for college graduates on the spectrum. However, I wonder about the percentage of autistics who actually graduate college with a four year degree. I strongly suspect it's quite low. Even for those high-functioning enough to obtain this education, there may not be much on a resume that is of use as most of them are quite young and don't have much experience in the career they're trying to pursue. Ne'eman is approaching a variety of private firms and attempting to address the issues of social barriers---the only comment I have is good luck in that endeavor.
Also, the mortgage company Freddie Mac has apparently entered into an agreement with ASAN to provide internships for those on the spectrum, Interestingly, Ne'eman is claiming these internships are paid positions, which seems odd as usually interns are people who volunteer in order to get experience.
It's interesting the neurodiversity movement would pick an organization that with its encouragement of subprime interest loans to persons who could never afford houses likely helped caused the largest economic crisis since the great depression. This organization (along with its sister Fannie Mae)went broke and cost the taxpayers more than 170 billion bucks in a bailout that has never been paid back. Gee, ASAN, you sure now how to pick a winner. I suspect an association with Freddie mac would be a liability on someone's resume, not an asset as Ne'eman is claiming, though I suppose I might be wrong about that.
As an individual on the spectrum who had great difficulty in the workplace, I resent Ne'eman discussing issues which he himself has no personal experience or knowlege. I don't believe it's productive for individuals to put up a conference offering simplistic solutions to real and hard problems.
I wish Ne'eman would go out and get a real job and actually get some life experience and work experience before trying to propose remedies.
Wednesday, February 15, 2012
Study finds autism affects motor skills
It was with interest that I read about a new study showing that autism affects motor skills. Claudia Hilton and John Constantino of the University of Washington studied many children with autism on standardized tests of motor performance. They found that motor skills were saliently lacking in the vast majority of children they studied.
This relates to my own life as I have fairly bad motor impairments myself. I did not learn how to tie my shoes until age 8, and had great difficulty in performing this. Though I can print somewhat legibly with great effort, I still have a handwriting impairment and my scrawl looks very much like "brain-damaged" writing. I still remember in the early 1960s when I saw a variety of handwriting tutors and had to have my recess taken away for a brief time to find time to give me extra help in this area. I also had tutoring in perceptual motor skills designed to help these problems but to no avail. I have difficulty wrapping presents and other fine skilled movements. However, my ability to type is more than intact.
I wondered if this was part of my autism as I had read about Stephen Wiltshire, Temple Grandin and others with extraordinary fine motor skills. To this day, I have never met a person, autistic or otherwise, who has a "fine motor coordination problem" as I have. I had read that autistic persons generally score higher on the performance part of the Wechsler IQ test than on the verbal portion. With myself, the opposite is true, where there is about a 40 point discrepancy between my relatively high verbal IQ and low performance IQ. Some studies, such as the ones done by the Mottron group and Uta Frith as well as others, show that at least some autistics have superior ability in the block design test on the Wechsler performance. I score in the retarded range on this. So, I have wondered if there was a subtype of autism involving poor motor skills. It would appear, from this study, that I'm not the only one.
The authors of this study speculate that the brain processes that give rise to motor coordination and social skills are controlled by a common area. It's possible that the frontal lobes are a candidate as they mediate the mirror neuron areas which could be involved in social judgement. In a previous post I wrote about parallels in autism and frontotemporal dementia which included poor social skills. So, I have to wonder if this could be key to the etiology of my problems.
Some of the motor and perceptual impairments I have also exist in adult patients with lesions of the right hemisphere of the parietal lobes called constructional apraxia. However, I might not have this as Eric Courchesne pointed out to me that adult lesions and developmental lesions might have different etiologies. When their research group did an MRI scan on me, they found I had hypoplasia of lobules VI and VII of the cerebellar vermis as compared to a normal control. This could explain my good typing motor coordination. Perhaps if the cerebellar damage occurs early enough it won't affect some of the autistics motor performance. However, in light of this recent study, I wonder if the cerebellum could be involved. Though, I'm not sure if it is involved in social judgement.
What Courchesne told me may have been slightly contradicted in a study done in the 1970s by Ralph Maurer and Antonio Demasio showing parallels between autism and problems in adult neurology patients with frontal lobe and basal ganglia impairments.
The basal ganglia are other brain areas that are involved in motor performance.
The reticular formation is another. In 1964, Bernard Rimland speculated that this area may be involved in autism. I don't think there is any empirical evidence to back that up.
It was somewhat of a relief to read about this study, as it means I may not be as atypical an autistic as I thought. Knowing about motor impairments may someday give me a clue to the etiology of my problems. I await further research.
This relates to my own life as I have fairly bad motor impairments myself. I did not learn how to tie my shoes until age 8, and had great difficulty in performing this. Though I can print somewhat legibly with great effort, I still have a handwriting impairment and my scrawl looks very much like "brain-damaged" writing. I still remember in the early 1960s when I saw a variety of handwriting tutors and had to have my recess taken away for a brief time to find time to give me extra help in this area. I also had tutoring in perceptual motor skills designed to help these problems but to no avail. I have difficulty wrapping presents and other fine skilled movements. However, my ability to type is more than intact.
I wondered if this was part of my autism as I had read about Stephen Wiltshire, Temple Grandin and others with extraordinary fine motor skills. To this day, I have never met a person, autistic or otherwise, who has a "fine motor coordination problem" as I have. I had read that autistic persons generally score higher on the performance part of the Wechsler IQ test than on the verbal portion. With myself, the opposite is true, where there is about a 40 point discrepancy between my relatively high verbal IQ and low performance IQ. Some studies, such as the ones done by the Mottron group and Uta Frith as well as others, show that at least some autistics have superior ability in the block design test on the Wechsler performance. I score in the retarded range on this. So, I have wondered if there was a subtype of autism involving poor motor skills. It would appear, from this study, that I'm not the only one.
The authors of this study speculate that the brain processes that give rise to motor coordination and social skills are controlled by a common area. It's possible that the frontal lobes are a candidate as they mediate the mirror neuron areas which could be involved in social judgement. In a previous post I wrote about parallels in autism and frontotemporal dementia which included poor social skills. So, I have to wonder if this could be key to the etiology of my problems.
Some of the motor and perceptual impairments I have also exist in adult patients with lesions of the right hemisphere of the parietal lobes called constructional apraxia. However, I might not have this as Eric Courchesne pointed out to me that adult lesions and developmental lesions might have different etiologies. When their research group did an MRI scan on me, they found I had hypoplasia of lobules VI and VII of the cerebellar vermis as compared to a normal control. This could explain my good typing motor coordination. Perhaps if the cerebellar damage occurs early enough it won't affect some of the autistics motor performance. However, in light of this recent study, I wonder if the cerebellum could be involved. Though, I'm not sure if it is involved in social judgement.
What Courchesne told me may have been slightly contradicted in a study done in the 1970s by Ralph Maurer and Antonio Demasio showing parallels between autism and problems in adult neurology patients with frontal lobe and basal ganglia impairments.
The basal ganglia are other brain areas that are involved in motor performance.
The reticular formation is another. In 1964, Bernard Rimland speculated that this area may be involved in autism. I don't think there is any empirical evidence to back that up.
It was somewhat of a relief to read about this study, as it means I may not be as atypical an autistic as I thought. Knowing about motor impairments may someday give me a clue to the etiology of my problems. I await further research.
Friday, February 10, 2012
interesting parallels between FTD and autism
It was with interest that I read an article in today's L.A. times about frontotemporal dementia. The man described in the article had a variety of social judgment impairment problems. When he stood in line behind a tattooed woman he said loudly, "Wow, that's a lot of tattoos." He would wander into property with no trespassing signs. This condition, also called 'Pick's disease', is similar to Alzheimer's in that it is caused by the buildup of proteins in the frontal and temporal lobes of the brain resulting in the degeneration of neurons in these areas. Alzheimer's usually happens in the area of the hippocampus and surrounding areas where it affects memory. FTD happens in a different area of the brain, thusly producing different types of manifestations and symptoms.
Upon looking at yet another website. It appears that some other symptoms can be inability to speak, echolalia and lack of emotional warmth.
I can't help but seeing some of the parallels between this condition and autism. Of course, this may be superficial. Those who believe that mercury could be the cause of autism have tried to demonstrate that there are similarities between the symptoms of those two conditions. Others, such as Karin Nelson and Margaret Bauman, have disputed these showing there are differences as well.
I have to wonder if what is known about FTD could open the door into resolving the mysteries of the etiology of autism. I'm interested in knowing exactly what have caused the myriad of problems and disability that I've had in my life.
A variety of research has suggested that autism could be caused by problems in the frontal lobes of the brain, particularly the most recent autopsy study published by Courchesne, et. al. I wrote about this research and the relationship to my life about a few months ago. Also, the data from the mirror neuron research done by Marco Iacoboni, Mirella Depratto(sp?) and others have also suggested frontal lobe involvement. Based on other frontal lobe impairments this area of the brain could be considered a good candidate, as it is where Broca's area, which generates spontaneous speech is located. Also, the frontal lobes are responsible for executive functioning.
I think the temporal lobes have been implicated in the etiology also but I'm not as familiar with this area. I do remember the Kluver-Bucy syndrome in monkeys whose temporal lobes were removed and the social problems and aggression it caused.
A problem with this line of thinking is that developmental impairments may be different than adult impairments. I asked Eric Courchesne about this when I first met him back in 1989. At the time, their research showing the hypoplasia of lobules VI and VII of the cerebellar vermis was making news. If the cerebellum were responsible for the problems of autistics, I wondered why they would have intact motor systems much of the time. His answer was that if the damage occurred early enough, it would not affect the motor abilities of persons with autism. Developmental lesions were different than adult lesions.
I have a bad handwriting and fine motor coordination problems, but my ability to type and do other types of motor activities is intact. These problems are sort of similar to the constructional apraxias of adults that have had lesions in the right hemisphere of the parietal lobe. A cerebellar impairment would not explain my ability to type fast unless what Courchesne said about the differences between developmental and adult lesions were true.
After I read Marco Iacoboni's book, I contacted him and wondered why if mirror neurons were deficient in persons with autism, why didn't someone with Broca's aphasia from a stroke develop autistic-like behaviors. I wondered if it were because developmental lesions were different than adult lesions. He responded stating that this could possibly be the case and also that the frontal lobes were just one part of the mirror neuron system so this could be a reason as well.
My disability has made it too difficult for me to apply myself and study neuroscience as extensively as I want to. Even if it didn't, I guess no one really knows exactly what causes autism.
The article about the frontotemporal dementia in today's times was quite intriguing. I was interested in reading about Stuart Bryant's problems. There did seem to be some parallels with autism, though I suppose it may not provide a clue about my problems or what is wrong with myself.
Upon looking at yet another website. It appears that some other symptoms can be inability to speak, echolalia and lack of emotional warmth.
I can't help but seeing some of the parallels between this condition and autism. Of course, this may be superficial. Those who believe that mercury could be the cause of autism have tried to demonstrate that there are similarities between the symptoms of those two conditions. Others, such as Karin Nelson and Margaret Bauman, have disputed these showing there are differences as well.
I have to wonder if what is known about FTD could open the door into resolving the mysteries of the etiology of autism. I'm interested in knowing exactly what have caused the myriad of problems and disability that I've had in my life.
A variety of research has suggested that autism could be caused by problems in the frontal lobes of the brain, particularly the most recent autopsy study published by Courchesne, et. al. I wrote about this research and the relationship to my life about a few months ago. Also, the data from the mirror neuron research done by Marco Iacoboni, Mirella Depratto(sp?) and others have also suggested frontal lobe involvement. Based on other frontal lobe impairments this area of the brain could be considered a good candidate, as it is where Broca's area, which generates spontaneous speech is located. Also, the frontal lobes are responsible for executive functioning.
I think the temporal lobes have been implicated in the etiology also but I'm not as familiar with this area. I do remember the Kluver-Bucy syndrome in monkeys whose temporal lobes were removed and the social problems and aggression it caused.
A problem with this line of thinking is that developmental impairments may be different than adult impairments. I asked Eric Courchesne about this when I first met him back in 1989. At the time, their research showing the hypoplasia of lobules VI and VII of the cerebellar vermis was making news. If the cerebellum were responsible for the problems of autistics, I wondered why they would have intact motor systems much of the time. His answer was that if the damage occurred early enough, it would not affect the motor abilities of persons with autism. Developmental lesions were different than adult lesions.
I have a bad handwriting and fine motor coordination problems, but my ability to type and do other types of motor activities is intact. These problems are sort of similar to the constructional apraxias of adults that have had lesions in the right hemisphere of the parietal lobe. A cerebellar impairment would not explain my ability to type fast unless what Courchesne said about the differences between developmental and adult lesions were true.
After I read Marco Iacoboni's book, I contacted him and wondered why if mirror neurons were deficient in persons with autism, why didn't someone with Broca's aphasia from a stroke develop autistic-like behaviors. I wondered if it were because developmental lesions were different than adult lesions. He responded stating that this could possibly be the case and also that the frontal lobes were just one part of the mirror neuron system so this could be a reason as well.
My disability has made it too difficult for me to apply myself and study neuroscience as extensively as I want to. Even if it didn't, I guess no one really knows exactly what causes autism.
The article about the frontotemporal dementia in today's times was quite intriguing. I was interested in reading about Stuart Bryant's problems. There did seem to be some parallels with autism, though I suppose it may not provide a clue about my problems or what is wrong with myself.
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