tag:blogger.com,1999:blog-8353442983052145851.post5338117664175489380..comments2024-03-14T18:26:18.208-07:00Comments on autism's gadfly: Do Autism Speaks' assets belong to neurodiversity or ASAN?jonathanhttp://www.blogger.com/profile/14972394536850151087noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-8353442983052145851.post-68696878468333648232009-11-28T06:53:18.231-08:002009-11-28T06:53:18.231-08:00Who cares about Autism Speaks? Even if neurodivers...Who cares about Autism Speaks? Even if neurodiversity did take them over, in practice, it would make no difference in terms of finding a cure for autism. AS is even funding research of neurodiversity advocates and has considered putting them on its board.<br /><br />Autism Speaks just makes everyone feel better by uniting them for a common cause while making them feel good and that they're making a difference, with their walks and fundraisers. What they really do is distract people away from critical issues about autism because they are very inconvenient to the agendas of some very powerful people. Bob and Suzanne Wright's own grandson, Christian, the reason for Autism Speaks's own existence, regressed after his vaccines, and yet only about 2% of AS's money even funds environmental research.Jake Crosbyhttp://www.ageofautism.com/jake-crosbynoreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-63354934942908747312009-11-27T15:51:44.122-08:002009-11-27T15:51:44.122-08:00I was the 5:41 AM Anon.
Yes, it was me.
I admit ...I was the 5:41 AM Anon.<br /><br />Yes, it was me.<br /><br />I admit to the crime.Stephaniehttps://www.blogger.com/profile/12540927559726674184noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-57901287624075487722009-11-27T12:01:23.533-08:002009-11-27T12:01:23.533-08:00Ari doesn't want to achieve success. His job ...Ari doesn't want to achieve success. His job is to sell out every person on the spectrum by lying about autism.John Besthttps://www.blogger.com/profile/03133970669787632440noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-542568641486985092009-11-27T10:14:40.075-08:002009-11-27T10:14:40.075-08:00I must clarify something here. I am not anonymous...I must clarify something here. I am not anonymous on this blog that posted at 5:41am. Though I agree with some of the observations of this anon, such as the ASAN list seemingly being dominated by AS folks and the self diagnosed (though I don't know everyone's diagnosis/lack of diagnosis), I did not post that message.<br /><br />I've received inquiries if I was posting as anon here. I did not post as anon. If I post, I will use my name.kent adamsnoreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-13376157229018213702009-11-27T05:41:42.529-08:002009-11-27T05:41:42.529-08:00Does anyone have a report which states that Autism...Does anyone have a report which states that Autism Speaks is actually working on developing a prenatal test for autism? This is ASAN's whole debate again Autism Speaks but I couldn't find any real information about it.<br /><br />ASAN doesn't seem to allow people with a diagnosis of "Autism" in their forums. You can only have a diagnosis of Asperger's, it seems, and it doesn't even have to be official: it can be self-diagnosed.<br /><br />So long as you agree with everything Ari Ne'eman says than you are welcome.<br /><br />I don't think Ari realizes that his own disability is getting in the way of him achieving true success with the autistic community.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-77909653676370451572009-11-26T14:24:01.084-08:002009-11-26T14:24:01.084-08:00All autistics want to be cured. All sane people a...All autistics want to be cured. All sane people agree on that.<br /><br />Thus, we may conclude that anyone claiming they don't want to be cured of autism is not autistic. They're just drug company shills and should be ignored, or locked up for fraud.John Besthttps://www.blogger.com/profile/03133970669787632440noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-89307768786902541182009-11-26T04:35:48.809-08:002009-11-26T04:35:48.809-08:00ASAN fans are peeved solely b/c AS has people that...ASAN fans are peeved solely b/c AS has people that give them money and they can't seem to raise it.<br /><br />Which tells you that AS has a message that appeals to parents with children (child or adult) with autism. ASAN does not.<br /><br />If ASAN did have an appropriate message and actually worked to better the lives of all adult autistics, those that wanted a cure or not, then they would raise the money.<br /><br />But they aren't lobbying for appropriate services, for job training - they do demand autistics are hired, social and behaviour training - can't do that, it's ok for them to abuse others (verbally or physically) b/c they have a dx, they aren't lobbying different States to improve adult services... Oh.. they go to meetings with the Pres so he can say he fullfilled that campaign promise... but do they have something constructive to say or just demands... <br /><br />People give money to those organizations that they feel represent the issues that are important to them and theirs. That money is not for the "group", it is not being collected for some organization that may have the same dx just b/c that organization cannot get it's act together and prove they are a viable entity.<br /><br />Sorry... When I give money, I expect it to go to the organization who's name is on the cheque... only. If the "state" ever demanded different, I think you'd find charity donations dropping to zero... What's the point in giving money just for someone else to give it where you don't want it to go... you do that paying taxes.farmwifetwohttps://www.blogger.com/profile/02680758336779501712noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-13860094416206061332009-11-26T00:24:29.812-08:002009-11-26T00:24:29.812-08:00I have not posted here for a while but it is hard ...I have not posted here for a while but it is hard not to make a comment at this time.<br /><br />I have recently tried to join the Yahoo ASAN group, as a parent of my autistic son. My son cannot stand for himself and cannot access the information that may be circulating in that group, which claims to be serving autistic people. This means, ASAN does not allow his voice, (which I am the only person on earth able to represent), to be heard. Perhaps Ari, would like to give me a good explanation for his refusal for him to be represented? <br /><br />Second, it is apparent from the interviews conducted in NYC at the Autism Speak concert, that those interviewed where totally bewildered by the questions asked. I don’t want to be cured… sorry, but why do you think people want to cure you? –their eyes seem to be saying, what are you talking about? That is not what Autism Speaks is trying to achieve, evidently. Nor it is to develop a test that would lead to ante-natal abortion of autistic foetuses. The few protesters that were there, might have difficulties, but they need accommodations and understanding, not a cure and Autism Speaks would be the first to agree with that. Their difficulties are evidently on a different scale than the ones experienced by the more severe Autistic people, like my son, and many more like him. The very ones Ari do not want to hear about. <br /><br />Intervention on any individuals, especially vulnerable children need research and evaluation. That’s why Autism Speaks does exist, independent source of funding is required to look into the issues that surround autism, that's a fact. Without ethical and relevant research, there will always be misinformation about. It is time to refocus the debate on what matters in autism. ASAN is able to provide some support to some autistic people at the higher end of the spectrum, good. But their action is countered productive to the rest of the autistic community and they will need to acknowledge this at some point, soon I hope. <br /><br />Why can’t we all work together with much clearer definition of what we are trying to achieve here, and what specific answers are needed for specific individuals. We always come back to the same issue; the diagnosis of autism as it stands at the moment is very misleading. That and many other still are worthwhile issue that need addressing. <br /><br />This ASAN/ Autism Speak debate, is a distraction from what matters. Best is to ignore this until true positive actions can be generated from ASAN.SM69https://www.blogger.com/profile/16239400845268784984noreply@blogger.com