tag:blogger.com,1999:blog-8353442983052145851.post2447114829546337283..comments2024-03-14T18:26:18.208-07:00Comments on autism's gadfly: Bashing Autism Speaks: My Turnjonathanhttp://www.blogger.com/profile/14972394536850151087noreply@blogger.comBlogger21125tag:blogger.com,1999:blog-8353442983052145851.post-72158472184971356232008-07-11T16:46:00.000-07:002008-07-11T16:46:00.000-07:00Actually from what I have seen "mongolian idiot" i...Actually from what I have seen "mongolian idiot" is a mostly 20th century term. But considering all the traits of Down's other then mental retardation, especcially in appearence and health problems, I can't believe it wouldn't have been discovered as its own disorder before the mid19th century. Seems just as unlikely as autism not being discovered for a great period of time. Course you have to be right.<BR/><BR/>But then again, it is obvious that you are deserate for someone to blame for your condition. It has to be someones fault, can't be your own, can't be your wifes, can't be Gods will, it has to be your doctors malpractice. Seems like a perfect scapegoat.Enderhttps://www.blogger.com/profile/13936753464525224578noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-37807019196691675132008-07-11T14:48:00.000-07:002008-07-11T14:48:00.000-07:00Ender, Downs has nothing to do with autism. It's...Ender,<BR/> Downs has nothing to do with autism. It's genetic while autism is man-made.<BR/><BR/> Nobody could ever confuse a person with Downs with an autistic person. However, people with Downs are also susceptible to autism since they may also have an inability to excrete mercury.<BR/><BR/> I believe the former name for Downs was "Mongolian Idiot". There is no former name for autism since it did not exist.John Besthttps://www.blogger.com/profile/03133970669787632440noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-28718614078724121472008-07-10T00:01:00.000-07:002008-07-10T00:01:00.000-07:00So I take it Johnyboys not going to respond to me ...So I take it Johnyboys not going to respond to me about there being no downs kids in the early 1800s. Typical.Enderhttps://www.blogger.com/profile/13936753464525224578noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-42210150271313263822008-07-07T09:04:00.000-07:002008-07-07T09:04:00.000-07:00Pennsylvania Tells Autism Speaks to Stop TalkingPI...<A HREF="http://www.examiner.com/p-191543~Pennsylvania_Tells_Autism_Speaks_to_Stop_Talking.html" REL="nofollow">Pennsylvania Tells Autism Speaks to Stop Talking</A><BR/><BR/>PITTSBURGH, July 3 /PRNewswire-USNewswire/ -- Yesterday in a historical and unprecedented move, the Pennsylvania legislature voted nearly unanimously in the affirmative for House Bill 1150 to mandate commercial insurance<BR/>companies to cover some services for children with autism. The bill, introduced by House Speaker Dennis M. O'Brien, requires insurance companies to cover up to $36,000 of autism-related treatment for individuals less than<BR/>21 years old.<BR/><BR/>In nearly one full week of roller-coaster negotiations with the House<BR/>Banking and Insurance Committee, headed by Senator Don White, the bill was stripped of all useful language, leaving Pennsylvania children with autism vulnerable to denials of coverage. House speaker O'Brien, along with<BR/>Pennsylvania Governor Edward G. Rendell and Secretary Estelle Richman of the Department of Public Welfare joined in condemning the gutting of the bill.<BR/>"The current version of HB 1150 may look like it gives coverage to families affected by autism, but it's an illusion. This version will actually hurt some families who have kids with autism. This risk is unacceptable," said<BR/>Speaker O'Brien in a statement released on June 29, 2008.<BR/><BR/>Autism Speaks, a national organization that conducts fundraising for research, and their paid lobbyists from Ikon, Inc., made several back-door<BR/>concessions on the bill without the consent of Speaker O'Brien. In an unparalleled move, the entire Pennsylvania and national autism community stood in unity to support Speaker O'Brien to say "Only the Speaker Speaks<BR/>for me." Over 62 organizations across Pennsylvania and nationally converged to show support for the Speaker, who has a nephew with autism.<BR/><BR/>"This is an amazing effort on the part of the entire autism community to tell Autism Speaks that the children come first, not politics," said Cindy Waeltermann, President of AutismLink, a statewide Pennsylvania autism<BR/>advocacy and information organization. "I think it is abundantly clear that Autism Speaks is not speaking for Pennsylvania. I've never seen this<BR/>type of grassroots activity in all my years in the autism community. This level of unity definitely sends a clear message, but is Autism Speaks listening?"<BR/><BR/>State Senator Jane Clare Orie, head of the Pennsylvania Autism Caucus touted the document as "a gold standard of care" for Pennsylvanians.<BR/><BR/>"Only with Speaker O'Brien's amendments, does HB 1150 become the strongest autism insurance legislation in the nation," said Karen Woodings, former president of the Autism Society of America, Greater Harrisburg Area Chapter. "I find it difficult to comprehend any autism organization not<BR/>supporting the Speaker's desire to pass the strongest bill possible. I was proud that the Autism Society of America stood firmly behind Speaker O'Brien on a local, state, and national level. The support of Pennsylvanians<BR/>affected by autism enabled Dennis O'Brien to fight for his bill and leave a legacy that will last far beyond his time as Speaker of the House."jypsyhttps://www.blogger.com/profile/01105669108222678038noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-18987202371990994142008-07-06T12:15:00.000-07:002008-07-06T12:15:00.000-07:00Ummm you forgot to comment on Down's not being dis...Ummm you forgot to comment on Down's not being discovered til the mid-1800s despite having existed since the beginning of time, most likely. Is it possible, nah probable, that doctors missed an obvious disorder for centuries and even millinia. Nah, that couldn't happen.<BR/><BR/>As for needing the whole person. I have known a great many atheletes who were/are jerks and dumb as dirt (anyone who could actually fail a test in an education class has something wrong with them) but would be worshipped by you. And you are so obsessed with horse racing you aren't really a whole person. I don't think anyone is, many people believe that we get so much to spend in our various intelligences. Aspies just spend it differently then you do. Not better not worse, but then again I don't see you getting published Johnyboy, being outdone by a 12 year old aspie, sounds bad to me.<BR/><BR/>So lets come to some sortof agreement. You don't force the cure upon anyone who is high functioning as a kid. You can try to force it upon your child all you want, though it seems to be doing little good. In addition to that you can force the cure on other low functioning kids all you want. And you can make the cure avaible to adults and young adults all you want, but don't force it upon them. Sound fair to you?Enderhttps://www.blogger.com/profile/13936753464525224578noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-17433170007549402842008-07-06T04:38:00.000-07:002008-07-06T04:38:00.000-07:00Ender, I haven't banned anyone from my site. I d...Ender,<BR/> I haven't banned anyone from my site. I delete lots of comments that are off topic and just plain stupid.<BR/><BR/> People with Asperger's have a diminished mental capacity. You have to consider the whole person, not just some aspect of the disorder that may allow Aspie's to be proficient at one thing. For lots of them, their lives suck. That should be improved if possible.<BR/><BR/> The negative attention I receive comes from people with mercury damaged brains who believe the propaganda from Neuroinsanity. They are the victims here, not me. Neuroinsanity has done a wonderful con job on you Aspie's and you lap it up like drunks who have some idiot encouraging them to stay drunk. It's like fat girls who decide to become lesbians because no man will have them instead of losing weight. Our society today enables all sorts of deviant behavior and you are also a victim of that.John Besthttps://www.blogger.com/profile/03133970669787632440noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-13446225754829870952008-07-06T00:26:00.000-07:002008-07-06T00:26:00.000-07:00One more thing... Downs Syndrome wasn't discovered...One more thing... Downs Syndrome wasn't discovered until 1866, though it has probably existed for centuries if not longer and in my short time on this planet I have known many people with the disorder. That sorta takes away your, "It is discovered as soon as it comes out" theory. Thanks for the idea Joesph http://www.downs-syndrome.org.uk/DSA_Faqs.aspx#faq46Enderhttps://www.blogger.com/profile/13936753464525224578noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-50789256609303024102008-07-06T00:22:00.000-07:002008-07-06T00:22:00.000-07:00Hey Joesph, drop me a line sometime at fnofsports@...Hey Joesph, drop me a line sometime at fnofsports@hotmail.com I like your styleEnderhttps://www.blogger.com/profile/13936753464525224578noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-30700496090416177232008-07-06T00:21:00.000-07:002008-07-06T00:21:00.000-07:00Sam, why do you use rates of autism that take into...Sam, why do you use rates of autism that take into account people with asperger's then? I mean we are propaganists that "lump asperger's with autism" you certainly should not do the same thing. Take it out of your statistics it shouldn't be too hard. Along with that how about you stop pushing for a cure to asperger's and stop insisting that asperger's must be caused the same way. You do that and you might get rid of a lot of your negative attention. Course we know you will continue to play victim while attacking... it is what you do.<BR/><BR/>Beyond that I don't imagine a disorder that effects 1/2500 people could go totally unnoticed. I mean it is the second leading cause of mental retardation today. This means that in largedinstitutions there would be bound to be several people with it. When autism was first noticed it was a select few people that they noticed had it. But yet no one came up with a name for it, it wouldn't be Fragile X but certainly a name like "autism" would have worked. Maybe it is possible Kanner was just the first to connect the dots... nah thats impossible.<BR/><BR/>P.S. Seriously, I bet if you stopped attacking aspies and HFA you would stop getting attacked yourself. Food for thought.<BR/><BR/>P.S. #2 Are you honestly complaining about being banned from a site when you have banned God only knows how many people from your own site for no other reason then they disagreed with you.Enderhttps://www.blogger.com/profile/13936753464525224578noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-11386959339018285632008-07-05T19:42:00.000-07:002008-07-05T19:42:00.000-07:00Joseph, I thought you were afraid to enter into d...Joseph,<BR/> I thought you were afraid to enter into discussion with me since I exposed Kathleen for the lying pig that she is and you banned me from your blog.<BR/><BR/> There's no circular reasoning here, Joe, except from you and Ender. Fragile x is so rare that it would be unlikely that anyone ever saw two cases of it. And, in Kanner's time, there was no genetic testing to figure it out. Since it is similar to autism, it gets lumped in with it, just like the way you propagandists try to lump in Asperger's with it.<BR/><BR/> This does not negate the fact that mercury poisoning which was misnamed autism, was recognized as a new disorder, having never been seen before. Comparing it to any other disorder is a bad analogy.<BR/><BR/> Autism was not called brain damage or anything else because Eli Lilly invented it in 1931. And, it just kept growing. You can probably tell me if Downs has remained constant throughout time, at least until lots of them began to be aborted.John Besthttps://www.blogger.com/profile/03133970669787632440noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-69214157283037804592008-07-05T14:52:00.000-07:002008-07-05T14:52:00.000-07:00The point John never seems to be able to address i...The point John never seems to be able to address is that if autism only existed since it was discovered, why can't we say the same about Fragile X, Rett's, Tuberous Sclerosis and even Down's? Didn't they start to exist shortly before they were discovered? Why not?<BR/><BR/>The answers you get are circular, of course. <BR/><BR/>For example, I once asked him what Rett's was called before 1944. He said it must have been called brain damage. Why couldn't autism been called brain damage? Well, because Kanner said it had never been seen before. Round and round we go.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-89710745409707617022008-07-04T23:26:00.000-07:002008-07-04T23:26:00.000-07:00Fragile X is the leading genetic cause of autism. ...Fragile X is the leading genetic cause of autism. No doctor in the world would disagree with me on that. So I take it, that it is your contention that it didn't exist before autism was "discovered". So that means in the past 70 years it has gone from not existing to effecting .04% of the population. Quite some growth there. And without the help of Eli Lilly or any vaccinations. How do you explain that little one. Is it possible that people had autism before it was "discovered"?Enderhttps://www.blogger.com/profile/13936753464525224578noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-61394298764789779002008-07-04T21:15:00.000-07:002008-07-04T21:15:00.000-07:00Ender, Fragile x is fragile x, not autism. Autis...Ender,<BR/> Fragile x is fragile x, not autism. Autism is mercury poisoning.John Besthttps://www.blogger.com/profile/03133970669787632440noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-75608056603188107182008-07-03T09:10:00.000-07:002008-07-03T09:10:00.000-07:00Wow. I thought this was tongue-in-cheek until I re...Wow. I thought this was tongue-in-cheek until I read the comments. [shakes head] Good luck, everyone - until the communities can pull together better than this, luck may be all we have. [signed] An Autistic AdultAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-36466041211792996602008-07-01T21:31:00.000-07:002008-07-01T21:31:00.000-07:00Johnyboy, autism didn't exist before 1931 occordin...Johnyboy, autism didn't exist before 1931 occording to you. Are you saying Fragile X syndrome (which causes autism in many/most cases) was not around until then either. If it was, then it was probably not noticed then. If it wasn't then that leaves the question of how a genetic disorder was invented in the past 75 years. You say that no one had ever seen an autistic before 1931... but fragile X existed before then... confusing aint it.<BR/><BR/>Occording to several internet websites it was discovered in 1969. Do you really want to suggest that it wasn't noticed before then? Or do you want to assume that it is unrecognizable. When 6% of autism cases today are caused by it, it seems that it should have been noticed by 1931. I mean thats 1/2500 kids today, and presumably would have been back then too. Are you really suggesting that widespread of a disorder would have been unnoticable. Or did Eli Lilly cause that too?Enderhttps://www.blogger.com/profile/13936753464525224578noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-75959656772582023642008-06-30T23:43:00.000-07:002008-06-30T23:43:00.000-07:00thanks for the tips, Johnthanks for the tips, Johnjonathanhttps://www.blogger.com/profile/14972394536850151087noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-81256750548365591482008-06-30T22:32:00.000-07:002008-06-30T22:32:00.000-07:00I used to use Beyer numbers but not anymore. You ...I used to use Beyer numbers but not anymore. You need to watch how horses cycle into and out of form. Aside from the best stakes level horses, most do not run consistent Beyer numbers. A horse who runs a good Beyer is usually more likely to "bounce" in his next outing.<BR/> Try looking for horses who have not raced in at least six weeks but have a class edge on most of their competition. Some are short prices but lots of them go off at better than 10 to 1. In general, horses whose odds are lower than their morning line at about 5 minutes to post are good bets. That includes 15 to 1 shots whose ML is 20 to 1, good shot at getting in the money for exactas and tri's.<BR/><BR/>Take a look at "E ponies" sometime. They make some excellent figures to use and easier to read than the DRF.John Besthttps://www.blogger.com/profile/03133970669787632440noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-62236986390216223282008-06-30T19:13:00.000-07:002008-06-30T19:13:00.000-07:00Well you are certainly entitled to your opinion, J...Well you are certainly entitled to your opinion, John and if I ever go to hollywood park or santa anita again, I will be emailing you and see if you can give me any good tips about picking winners. But I am not as smart about handicapping as you. I just look at the Beyer figures and the workouts and don't take too much else into account. This has picked some winners for me albeit at low prices but I still can't make money wagering on the ponies like you can.jonathanhttps://www.blogger.com/profile/14972394536850151087noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-56685448466007332542008-06-30T16:25:00.000-07:002008-06-30T16:25:00.000-07:00The age of the father has nothing to do with autis...The age of the father has nothing to do with autism. If it did, some old guys would have produced autistic kids before 1931 when autism was invented by Eli Lilly and thimerosal.John Besthttps://www.blogger.com/profile/03133970669787632440noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-37082779785992267232008-06-30T14:51:00.000-07:002008-06-30T14:51:00.000-07:00Well, concerned heart, I am not sure that they nec...Well, concerned heart, I am not sure that they necessarily need to do that. Anyone who has read the studies of Jonathan Sebat and that team from israel knows about this. It has not only been reported in the scientific journals it has also been reported in the general media. That is in fact how I found out about it as I have been lax in recent years in reading the scientific literature so it is pretty common knowledge, so though I have problems with autism speaks I think this is a rather non-issue as far autism speaks is concerned. <BR/><BR/>I do agree it is an issue that needs to be raised and I am glad you have a blog that addresses this issue. I also think it is going to be used as an avenue for further research though I might be wrong about that.jonathanhttps://www.blogger.com/profile/14972394536850151087noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-70515504576845613762008-06-30T14:03:00.000-07:002008-06-30T14:03:00.000-07:00I also bash Autism Speaks because I know they know...I also bash Autism Speaks because I know they know that plenty of non-familial autism is caused by older paternal age in one generation or another and they never use their fortune to warn people about the relationship between the male genetic biological clock and autism.concerned hearthttps://www.blogger.com/profile/14987948292416367555noreply@blogger.com