tag:blogger.com,1999:blog-8353442983052145851.post2379717243023319635..comments2024-03-14T18:26:18.208-07:00Comments on autism's gadfly: my aborted MRI scan at cal techjonathanhttp://www.blogger.com/profile/14972394536850151087noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-8353442983052145851.post-48060332753773993602010-04-11T10:20:10.787-07:002010-04-11T10:20:10.787-07:00I thought non-normal head size was more a characte...I thought non-normal head size was more a characteristic of autistic children than adults. A researcher may not a subject to see results as that may influence the subject's behavior in any follow-up.<br /><br />One would think the records of your minor children would be open to the parent. However there are exceptions such as abortion. Perhaps HIPAA regulations prevented the doctor from letting a parent see the scan. Perthaps he was worried that your reaction could influence the scan. Both of these opinions are purely conjecture.ian MacGregornoreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-57958442076982666212010-04-11T05:42:19.524-07:002010-04-11T05:42:19.524-07:00And what do you think of not having access to the ...And what do you think of not having access to the results of a normal hospital investigation?<br /><br />This happened to me recently, my son was having an EEG when he suffered severe drug-side effects from an anti-epileptic. At the time, it was not known why he had deteriorated so badly. As he lay with his dad on the bed, being monitored, I stood behind the technician, looking at the traces on the computer screen. I was told I was not allowed to watch. I was shocked, I argued for a few seconds at the non-sense of this, but I thought all the guy was doing was his job and there was no bending on rules. At least he could not bend. And I needed to keep all my energy to myself and to help my son, at the time, we had no clue where we were heading. So I did shut up.SM69https://www.blogger.com/profile/16239400845268784984noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-87256516985673334202010-04-10T13:08:10.366-07:002010-04-10T13:08:10.366-07:00I don't know about the sizes of the head coils...I don't know about the sizes of the head coils, they might be designed to fit people with smaller noses than myself, i don't know. They apparently do scan some other persons with ASD's and they are grown as this group only does 18 and up. <br /><br />I was told by Dan Kennedy that he is not allowed to even see his own brain. Matthew Belmonte told me that some review boards don't want people looking at their own brains because if they have some disease and see it, it might upset them.jonathanhttps://www.blogger.com/profile/14972394536850151087noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-59716363199139739792010-04-10T10:58:33.119-07:002010-04-10T10:58:33.119-07:00"The coil for this machine was quite small an..."The coil for this machine was quite small and could not fit on my face so I was not able to participate in this study either. "<br /><br />Just curious, is the coil meant for typical heads? Seems like an oversight if so. Many if not most autistic people have macroencephaly, and typical "head gear" is too small for us. <br /><br />The only reason I believe that researchers don't allow subjects to review their own scans is out of convenience to the researcher. Do you think there could any other reason than that?Kent Adamsnoreply@blogger.com