tag:blogger.com,1999:blog-8353442983052145851.post1313969432486925483..comments2024-03-14T18:26:18.208-07:00Comments on autism's gadfly: Ari Ne'eman and ASAN try to take over CARES act and exclude pro-cure autistics jonathanhttp://www.blogger.com/profile/14972394536850151087noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-8353442983052145851.post-57106377783979997162014-10-16T17:27:46.062-07:002014-10-16T17:27:46.062-07:00@ you're anonymous. I agree with you. The ND...@ you're anonymous. I agree with you. The ND movement seems to have a penchant for recruiting those as young as possible. I wrote about that in a post some years ago, "neurodiversity, teach your children well." I get a bit tired of reading their spiel also, but I feel I should publish opinions on my blog that don't agree with my own as long as they are not abusive toward me. jonathanhttps://www.blogger.com/profile/14972394536850151087noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-92033149259499152732014-10-15T19:26:36.428-07:002014-10-15T19:26:36.428-07:00I'm so tired of reading these ND'er's ...I'm so tired of reading these ND'er's comments Jonathan. Without a doubt, these are teens and young 20 year olds who have never had full blown autism, never spent a day in a self contained autism unit or even knew a kid/adult who did. They are old and tired, yet think they are new to all this. They will never acknowledge those with classic autism, which makes them the worst type of bigots.......I'm Anonymoushttps://www.blogger.com/profile/06386324013172993426noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-36626417144286239602014-10-04T19:06:34.328-07:002014-10-04T19:06:34.328-07:00Anonymous 6:27 who won't sign their name. Tha...Anonymous 6:27 who won't sign their name. That's a cop out argument if I've ever heard one (maybe you remember that expression popular during my youth) 'nuff said. jonathanhttps://www.blogger.com/profile/14972394536850151087noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-14644170730254723152014-10-04T06:28:18.902-07:002014-10-04T06:28:18.902-07:00Oh... and there are many neurotypical PhDs unemplo...Oh... and there are many neurotypical PhDs unemployed, underemployed, or even homeless. Strawman argument.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-73140737444902891262014-10-04T06:27:01.036-07:002014-10-04T06:27:01.036-07:00I am the "anonymous" being addressed bei...I am the "anonymous" being addressed being asked to show PhD examples beyond Temple Grandin. You are confusing potential with success. You are also assuming that 1) people with autism and advanced degrees spend all their time announcing that they have both, 2) that somewhere somebody gives enough of a care to seek out all the autistics on the planet and keep stats on them regarding such successes, and 3) that IQ testing is a valid measure of someone's lifetime potential, when in fact such scores are fluid, depend on which test is given and how, test administrator bias, and subject's motivation to participate - a famous example there is Einstein, who scored a 70 on an IQ test when he was young, and when asked about it later, noted that the examiner clearly already new the answers to all these simple questions and so why answer?<br /><br />I work with autistics in my career, I am autistic, and my son is autistic. I am working on a doctorate in the psychology of autism. Research is increasingly reflecting what adult autistics are claiming - that intelligence across the autistic community is spread similarly to the "neurotypical" population. I have neither the time, nor the motivation, to do your research for you... you're the person making claims of general intellectual disability in autism, so I'd suggest you do some additional peer-reviewed literature review in this area, focusing on 2012-2014 publications. :)<br /><br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-12061301123722284482014-09-30T21:14:47.120-07:002014-09-30T21:14:47.120-07:00"The point is that people on the autism spect..."The point is that people on the autism spectrum have the SAME intellectual spread as those without."<br /><br />Studies say otherwise. http://www.ncbi.nlm.nih.gov/pubmed/21272389 Autistics are heavily inclined to intellectual disability.Lucia Bevilacquahttp://reachforautismrecovery.tumblr.comnoreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-23383261073002434992014-09-30T08:01:17.205-07:002014-09-30T08:01:17.205-07:00If you can cite a few non self diagnosed autistic ...If you can cite a few non self diagnosed autistic ph.d's (temple grandin the notable exception), I'd be interested, 85% of autistics in england are unemployed according to NAS study. I don't need any actual data, it's common sense, the vast majority are not going to make it or be anything like the representation of the IACC. Maybe you should back up your statistics. Most nonverbal people with autism have significant behavioral problems that are going to prevent them from succeeding in the world, regardless of what ND spin you want to put on it. jonathanhttps://www.blogger.com/profile/14972394536850151087noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-85447997265222082932014-09-29T04:23:30.457-07:002014-09-29T04:23:30.457-07:00Only 3% of those on the spectrum have an IQ above ...Only 3% of those on the spectrum have an IQ above 115, so the intelligence argument is bunk. Though we have a greater sense of detail, being able to spot Waldo quickly isn't the same as being able to function effectively and not struggle in society.Luciahttps://www.blogger.com/profile/06118556326737163882noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-72421775776328834412014-09-28T13:02:07.820-07:002014-09-28T13:02:07.820-07:00you are ignoring all of the autistics who are succ...you are ignoring all of the autistics who are successful because of their memory, intelligence and sense of detail, plus their contemptness of a lot of autistics.hdlmatchettehttps://www.blogger.com/profile/08178089010979081942noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-30695034313128792502014-09-28T12:18:56.587-07:002014-09-28T12:18:56.587-07:00Never be a PhD candidate? You don't know many ...Never be a PhD candidate? You don't know many autistic people then.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-5459635538754537232014-09-25T23:20:56.757-07:002014-09-25T23:20:56.757-07:00Anonymous 9:17, I agree with you completely, '...Anonymous 9:17, I agree with you completely, 'nuff said. jonathanhttps://www.blogger.com/profile/14972394536850151087noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-20305419136462958772014-09-25T21:17:54.522-07:002014-09-25T21:17:54.522-07:00Notice how ASAN likes to use low functioning autis...Notice how ASAN likes to use low functioning autistics sometimes as agreeing with their mission, as if to win propaganda points? By using those people,they help legitimize their dangerous agenda. But @ the same time,how much do groups such as ASAN actually do for those less capable than them? My sense is not that much. @ least that's my impression. They'll never listen to us due to the fact Ari Ne'eman happens to be the son of very influential people & as a consequence, has got the powers that be by the ear. Makes me wonder whether what lower functioning autistics really think about being cured. What I find sadly amazing is how certain lower functioning autistics think being autistic is wonderful. Which begs another question. Are they really being honest with themselves deep down? Or much of the rest of the people on the spectrum for that matter.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-88257809477269257712014-09-24T21:41:17.405-07:002014-09-24T21:41:17.405-07:00p.s. roger you might also want to write to sylvia ...p.s. roger you might also want to write to sylvia Burwell, the secretary of hhs whose address is in the letter ASAN wrote that I linked to. She's where the buck stops as far as IACC appointees are concerned if i'm not mistaken, though I'm guessing Insel's recommendation carries a lot of weight and she rubberstamps the people he recommends. jonathanhttps://www.blogger.com/profile/14972394536850151087noreply@blogger.comtag:blogger.com,1999:blog-8353442983052145851.post-39180916713302201192014-09-24T21:34:33.578-07:002014-09-24T21:34:33.578-07:00Hi Roger, I'm not sure how much persons on the...Hi Roger, I'm not sure how much persons on the spectrum without scientific training can contribute to research, but I perfectly understand how you feel. Even if you could get on the IACC, I doubt you'd be able to persuade the government to do things the way you want. I suspect the public appointees are merely symbolic and the federal government doesn't listen to what they have to say. But, I realize you follow those meetings closely and know more about them than I do. I wish you luck if that is what you want. <br /><br />ASAN is not in favor of including your point of view or giving you a seat at the table they're talking about. They have no interest in cerebral folate disease or research on mitochondrial issues, etc. They only want persons who may or may not really be on the spectrum to help persue their agenda. jonathanhttps://www.blogger.com/profile/14972394536850151087noreply@blogger.com